Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
Hi everyone,
It's one month exactly since I was in the ER in excruciating pain, confused and scared, and eventually getting my diagnosis of PE. I just thought I'd check in and let you know how I'm doing. I'm now in my second trimester of pregnancy and everything seems to be good with the baby. I'm feeling better, more energy, no pain. Today I went swimming and I think I'm going to try to do that more often. I used to be a big walker but I find it less enjoyable now because I feel out of breath after a few blocks. I'm going to see a therapist next week to talk about some of my feelings and anxiety post-PE. Going though this brought up a lot of feelings, and like some of the other members, it made me realize some things about my life that I maybe need to change. I feel less anxious about the clots coming back now but that will probably change when they take me off Fragmin (several weeks after the birth.) I still cry a bit every night, usually when I'm trying to fall asleep. It seems to be the time when I go over some of the trauma of having PE, dealing with our healthcare system, being scared etc... I do still worry about the CT scan I had and radiation and how it could affect the baby, but there's not much else I can do about it now. So that's where I'm at. I enjoy reading how people are doing here and wish you all the best.
It's one month exactly since I was in the ER in excruciating pain, confused and scared, and eventually getting my diagnosis of PE. I just thought I'd check in and let you know how I'm doing. I'm now in my second trimester of pregnancy and everything seems to be good with the baby. I'm feeling better, more energy, no pain. Today I went swimming and I think I'm going to try to do that more often. I used to be a big walker but I find it less enjoyable now because I feel out of breath after a few blocks. I'm going to see a therapist next week to talk about some of my feelings and anxiety post-PE. Going though this brought up a lot of feelings, and like some of the other members, it made me realize some things about my life that I maybe need to change. I feel less anxious about the clots coming back now but that will probably change when they take me off Fragmin (several weeks after the birth.) I still cry a bit every night, usually when I'm trying to fall asleep. It seems to be the time when I go over some of the trauma of having PE, dealing with our healthcare system, being scared etc... I do still worry about the CT scan I had and radiation and how it could affect the baby, but there's not much else I can do about it now. So that's where I'm at. I enjoy reading how people are doing here and wish you all the best.
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My 6mo twin DD's are EBF and just started rice cereal on the first. Everything has been going fine except this morning one of them had a diaper rash (lots of redness around her anus). I read this as one of the signs of an allergy. BUT I did just buy a different brand diaper yesterday (which they have used randomly before w/no issues). Do you think its the cereal or the diaper? Im ready to start...
A few tears now and then are probably OK, but if you find it is taking over your life, consider seeing a therapist for a few visits to help you sort it out.
I used to do that too ... lie in bed and walk through the whole 24 hours before I was diagnosed. After a while, it became less immediate and I didn't do it as much any more. There really isn't a good way to stop doing that and I'm not sure you need to. For me, anyway, revisiting it just meant that I was processing it. At some point, I came to terms with the whole thing and I think that was when I started sleeping better.
Hope that moment comes to you too! Thanks for the update!
Thank you for posting. I am 14 weeks preganat and got dignose with bilateral PE's 3 weeks ago. Im so scared about the radiation to the baby, but the ulstrasound was fine.
Im still pretty unwell, i cant walk more than 5 steps at a time without being out of breath and coughing a lot.
Im very scared about the birth as the injections i am on means i cant have an epidural and i am a wimp!!!!
Its just nice to read another mum in her second trimester, ive been scanning the internet and found this site today and its been so helpful reading everything
D x
Thanks for your reply. I'm glad to find another mum who's going through PE while pregnant. It's not easy to go through this! It sounds like we have the same concerns about the radiation from the CT scan, but I find I'm worrying less as the pregnancy goes on. I can;t do anything about it now, and I really had no choice but to get the scan so I could be diagnosed and treated. I didn't know that about not being able to have an epidural. I know I'm going to be induced and was also for my last pregnancy (for non-PE reasons) and the contactions were very strong and really close together so I had an epidural. I'll ask my obs about that at my next appointment. Sorry to hear you're still not feeling well. It seems everyone's recovery is different and it still hasn't been that long since you had the PE. Take it easy and rest as much as possible. I find I have good days and bad days and I usually hit a wall at around 4 pm and I just need to lie down, and sometimes I do for the rest of the evening. Feel free to send me a message if you want to talk some more.
I've messages you . I feel so much more positive since joining this forum yesterday it's taken the feeling of being alone away xxxx