Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
bsmith4421
Is it normal to get pain after four months of treatment with warfarin? The last few days I've had an on and off harp pinch in my left lung where the PE was located. Usually it's a dull ache but now it's kind of sharp. I did have an infarction of the lung too.
ShilosMommy
Yes, I consider that normal. If you see some of the other posts, people are saying it's basically normal to still be feeling some symptoms a year or more into recovery. At about three months, I had this idea that I should be all better and the truth is I was anything but, and I felt extremely frustrated. This is just something which takes a lot of time to heal from, it's a big trauma for our entire body. And for me personally, cold weather also would tend to kick up some extra pain, so if you're out and about at all, it would not be a surprise to me that an ache would turn into a sharper pain if you've been out breathing cold air or something. Or sometimes it just happens for no reason. It's hard to do, but as long as we're getting our INR checked and know we're in range, we just have to trust that the warfarin is doing its job and understand that healing takes time, allow our body to go through its process.
rmb
A lot of people report continued pain or discomfort for a while after diagnosis. If you had an infarction, makes sense you'd have some degree of discomfort. Of course, mention it to your doc if you're concerned or if it worsens.
bsmith4421
My inr has been surprisingly easy to manage and the last ct I had, about 2 months out from my pe, showed the clots were smaller. I just worry since I have aps that ill clot a lot easier even while taking warfarin. Maybe I won't though if it was doing the job for the old clots.
rmb
I think if you have concerns about clotting on warfarin, talk to your hema about the potential for that happening, the odds of that happening, is our INR level appropriate for you,etc. Sometimes just having talking it through and getting the info can help put your mind at ease a bit.
bsmith4421
we talked about it. he said it's possible and just watch out for the signs. The thing is, this pain is in the same spot as it has been the whole time so I'm not too terribly worried. I just didn't really know if it was normal after all of this time.
TossNTurn
I had pain on and off up to about 11 months. Mostly it would show up if I was pushing myself too hard or had been in some sort of lung-stressing situation (high humidity, extreme heat or cold, heavy cleaning fumes, etc.). It got gradually less over time, and hopefully yours will too.
ShilosMommy
I think they usually recommend APS patients maintain their INR between 2.5-3.5. So if you stick to that,you should be alright. Of course, you do always need to be aware of symptoms which change significantly. It's a bit of a project in and of itself to learn what's normal for you to feel as you recover.
bsmith4421
I actually looked at some research online about inr and aps and it said there isn't enough support to back the idea that a higher inr is needed which I wasn't sure of and apparently the doctors don't think so either. It's all confusing haha
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