i've just taken one big step toward coming off the warfarin - had a venous study this morning and the technician told me there are no clots and everything looks fine. YAY!

saw my pulmonologist yesterday who isn't inclined to repeat the CT scan to check out the PE clots, nor am i - i'm symptom-free and his thinking is that if the originating clot is gone, the resulting ones are probably gone as well. he drew some blood for the leiden factor 5 test, just in case. assuming that comes back clean, i'll be stopping the warfarin and consulting w a hematologist for a couple last clotting factor tests. then...keeping my fingers crossed to be clot-free going forward.

thanks to everyone here for the support and for acting as my sounding board. it's nice to not feel so alone when you're going through this!