Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
My class in pathology (dental hygiene) produced a wave of 'oral cancer' in almost everyone in the class! Fortunately none of us had it. (grin)
I guess the part that I struggle with the most is that at the time I didn't think I was that sick and that I would be fine. Now I know better, that I am very lucky; especially when the doctors tell me that they give tPA as a "last ditch" effort to prevent death - yeah that kinds punches ya in the gut!
I really want to know exactly what the doctors told my family but I can't bring myself to ask because I know they were traumatized as well, so I just try not to talk about any of it and pretend that all is fine, which it is for the most part. But every once in awhile it all comes flooding back!
Cave76 - I get it. I used to work in neurology before I had kids and I was convinced that there were no "normal" babies in the world LOL, because you only see those with problems!
It is funny that now that I have been through this everywhere I turn there is something about PEs. A friend told me recently that her husband's first wife died from one. The PA-C that was taking care of me in the hospital her mother died from one 6 months before I had mine. You read about athletes and celebs having them. The fact that I work with medical records probably doesn't help either LOL.
I just have a hard time wrapping my head around the fact that it seems to me more common that I realized yet the symptoms are attributed to other ailments first. That and people think it is not a big deal because "Hey you survived" - UGH! Ok I'm done LOL.
Happy thoughts to all my fellow survivors - we are stronger than this ailment! Love "chatting" with you all :D
***I just have a hard time wrapping my head around the fact that it seems to me more common that I realized yet the symptoms are attributed to other ailments first***
One of the reasons is because CDC, in their ultimate wisdom, hasn't instigated a surveillance program yet. (I'm sure they're 'working on it')
Compare what can be found at the CDC site(s) about asthma with what can be found out on VTE.
Asthma (because there's been surveillance about it for a long time)
"Asthma Surveillance Data
Asthma surveillance data includes collection of asthma data at both the national and the state level. National data is available on asthma prevalence, activity limitation, days of work or school lost, rescue and control medication use, asthma self-management education, physician visits, emergency department visits, hospitalizations due to asthma, and deaths due to asthma from National Center for Health Statistics (NCHS)"
http://www.cdc.gov/asthma/asthmadata.htm
VTE, by comparison, only merits this 'suggestion'.
"Abstract
Deep vein thrombosis (DVT) and pulmonary embolism (PE), known collectively as venous thromboembolism (VTE), affect an estimated 900,000 people in the U.S. each year, resulting in several hundred thousand hospitalizations and about 300,000 deaths. Despite this substantial public health burden, no systematic collection of VTE-related morbidity and mortality data exists in the U.S. The available information about disease prevalence and incidence consists of estimates based mainly on population-based epidemiologic studies and analysis of hospital discharge or health insurance claims databases. The limited scope of the available data has raised the question of whether a systematic surveillance system for VTE should be established."
http://www.ajpmonline.org/article/S0749-3797(10)00057-7/abstract
So, until the CDC gets that 'systematic surveillance system' in place--- we'll suck hind tit, to use an old phrase from my farmer-parents background.
YEEOUCH!!!!