Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
I am 3 weeks out from my pulmonary embolism. Im 38, healthy, active, non smoker, healthy weight, no injuries, no travel. No risk factors at all other than birth control.
I had "numerous" clots in both my left and right leg, with pulmonary infarction, and two clots in my leg. While in the hospital, I was actually breathing ok when the pain was controlled. I finished last week my shots of Heperin and I take Warfarin. I really don't know what to expect and I am not sure if my symptoms are normal.
There are times when I feel almost normal. There are times when I am so exhausted I can barely function. Right now, i am struggling for air, and just can't breath. the fact that I have asthma doesn't help.
Ive been told that exhaustion is not a side effect of the medication or a symptom of the PE. I can't get my INR regulated. One day its up over 3 and several days later its under 2. I am having leg cramps which freaks me out b/c I keep thinking I am having another clot. I have been put through MRIs of the brain to make sure clots didn't go there. I am going to see an oncologist to make sure I don't have a tumor. The doctors keep telling me that they are perplexed. I have been told its a "mystery" and they have no idea why I have so many clots in my lungs.
Im looking for moe advice on what I should expect? will this exhaustion go away eventually? the headaches subside? Will my interest in doing anything outside of the house return?
I had "numerous" clots in both my left and right leg, with pulmonary infarction, and two clots in my leg. While in the hospital, I was actually breathing ok when the pain was controlled. I finished last week my shots of Heperin and I take Warfarin. I really don't know what to expect and I am not sure if my symptoms are normal.
There are times when I feel almost normal. There are times when I am so exhausted I can barely function. Right now, i am struggling for air, and just can't breath. the fact that I have asthma doesn't help.
Ive been told that exhaustion is not a side effect of the medication or a symptom of the PE. I can't get my INR regulated. One day its up over 3 and several days later its under 2. I am having leg cramps which freaks me out b/c I keep thinking I am having another clot. I have been put through MRIs of the brain to make sure clots didn't go there. I am going to see an oncologist to make sure I don't have a tumor. The doctors keep telling me that they are perplexed. I have been told its a "mystery" and they have no idea why I have so many clots in my lungs.
Im looking for moe advice on what I should expect? will this exhaustion go away eventually? the headaches subside? Will my interest in doing anything outside of the house return?
I am finding it a little frustrating we are all coming back with the same answers of "the docs say it shouldn't be"! At least we have each other, so we know we aren't crazy!
It is a day to day situation, and every person is going to experience it differently, though I also experienced the symptoms of the clots after the fact. The knife analogy is a very good one! As several people have mentioned, take it easy and don't push it too hard! I ended up getting mono because I was trying to get back to "normal" too quickly. My best advice is to never feel guilty about taking a nap!
This kind of statement from doctors gets my blood boiling and (IMHO) sends many of us through round after round of unnecessary testing and can (in some cases) terrify us because we're convinced we've got cancer somewhere or something else equally scary.
In my mind, this is like taking the guy who grew up outside of Chernobyl and being confused over why he has cancer now. There IS a cause.
Anyway ... my little rant. Maybe there is a secondary cause, but I think most of the time the Pill can, and IS the primary cause.
This is a wonderful group!
I am only a month out from my PE's and DVT.
I still get tired but not as easily as I did at first.
I still have killer lower back pain!
I don't like to sleep on my left side yet. That is where the pain started.
Mine is caused because of a Genetic Mutation I got from BOTH my parents. Rare but true. LOL
I do believe the Birth Control pill can cause PE's.
They took me off mine and won't let me back on them.