Hi Dianne,
So sorry you are going through this. What you are feeling is very normal. I had a PE last March out of the blue, only a short flight which doesn't really explain it. I was in very good condition, a triathlete. For the first few months I was very anxious about sudden death, but now, a little over 5 mo out, I feel very normal again and don't worry about death and my anxiety is much better. Just give you self time to heal physically and emotionally. You are on the road to recovery.

Hi Dianne,

I had something similar last November, and then recurred last July, just before we went away for a short break. Was on 10 or 15 warfarin for a short time. When I got back from the break, my INR had hit 6. This isn't good practice, but at least I wasn't in danger of clotting during that time :-).

Anyway, a few things to try and make you feel slightly better. Generally, your INR goes up by .1 or .2 each day in the beginning, this is normal. Similarly, if you were going to drop dead, ,this would probably have happened last Sunday. It didn't, you got correctly diagnosed and are getting the right treatment. It may take some time to recover and fatigue is common (see the posts on this forum). Often the DVT is hidden, even when your PEs are obvious, and generally the lower down the leg the better. Also, you'll have quite a few tests in the next few weeks. You may find out what caused it, but quite a few don't.

Do some reading up about this stuff, these two forums are probably the most active/helpful around. However, there are quite a few other sites like
clot connect
stop the clot
which have good introductory guides, reference stories about PEs and DVTs.

Try and relax and get some rest.

thanks so much for the comments..I have been on this site all day...here and the DVT group...have learned so much and feel like I found a great place....hubbs does not exactly get it so I feel good that I can talk here...

Do a google search, something like

site:www.dailystrength.org "pulmonary embolism" husband partner support

and have a read through the different threads. If necessary, get him to read some of the stuff as well. Life will probably be easier for you, if he gets some of it.

The thing we forget is that our spouses, partners and families are dealing with the potential loss of a loved one. So they're dealing with things too, but from a different angle. And depending how they cope, it can come across as indifferent or not supportive. Once I got home from the hospital, my husband assumed I was back to normal 100%. In his mind, why would they have let me come home otherwise. But it's not that clear cut, and it just takes a while for everyone to acclimate to the actual recovery part of the process. I just kept the lines of communication open with my husband, me talking but also letting him talk and express himself. It's hard, and we had plenty of moments feeling like we weren't being heard, or that we weren't being understood. It gets better with time.

You know your husband best and understand how his thinking and emotions work. So you use that understanding of him to get him to the point where he can sort of see what you're going through, but ultimately, people who don't go through it never get it. That's with anything in life.