I think a lot of us have had problems in the warmer weather and humidity. If you're really concerned, aboslutely go see your doc or go to the ER to be checked out. It isn't worth stressing over when you can find out for sure if there is a problem.

I've been off work for the last few days because I've been having a hard time breathing too. It is getting better although no one seems to know exactly what is causing it.

Honestly, I felt worse four weeks after diagnosis than I did when I landed in the hospital with the PEs in the first place. I think I was just pushing it too hard and wound up with increased exhaustion and pain. I rested a lot and that helped.

Hang in there! Keep us posted!

I'm actually 4 weeks out on bi-lateral PE's with infarctions too. I went back to the ER about a week ago for pain/SOB. Eventhough I didn't have any new clots, I did develop pleurisy....so I was glad that I went. I know that in the heat and humidity I have more trouble breathing. I would go and get checked out just to put your mind at ease because I know I felt a ton better the minute the Dr. saw me at the ER. I think it's a security thing, like if something happens you're already there.

Hope this helps to ease your mind...keep us posted.

I get days when mine are "tired" too. Definitely the humidity does not help! Or sometimes when I exercise they feel tired. Right there with you. Feel better soon. Take care!

I meant it feels like it does when I go somewhere humid, but it is actually not humid at all where I live. Anyways, I did end up going to the ER today, and they were really concerned at first because my pulse was 140 (yikes! lol) but they ran tests, and eventually my pulse went down and all of the tests came back fine so they basically said they couldn't see what was causing it and sometimes these things just happen but they have referred me to a lung specialist just in case.

What comes first- checking the INR, seeing it's below 2 and then getting the SOB, or do you have SOB, get the INR checked and then you learn that it's below 2?

If this starts happening after you learn your INR is below 2, I wonder if you're experienceing anxiety, which can cause SOB, heart racing, all that stuff. That could be why your pulse is at 140 and then after all the tests are completed, it's normal.

I'm not dismissing your symptoms as anxiety; I'm just saying, the physical response to being anxious is really powerful and so many of us have gone through that. It may be a possibility.

I actually get sob before I get my INR checked. My mom is actually who pointed it out to me that a few times I had come downstairs in the morning and said something like "i think i am getting a cold" or just commenting that my lungs feel weird and each time I said that my INR ended up being low.

How often do you have your INR checked? They found my 5 PEs in March and I have been back in the hospital 3 more times since then but I have my INR checked every Friday. I notice the SOB when my INR is low too so that must be a sympton? Hope you are feeling better.