Bless you. Since my pe in November I have developed something called leg parenthesia. Basically I get really bad pain in my outer thigh especially after sleeping and it also has times where it feels numb and burning. I developed it presumably because of how I had been sleeping upright because of pain on my chest and didn't move in the night. It's something to do with damaging the nerve that runs from your back to your thigh. Nevertheless I was terrified it was DVT and went to see my doctor, I recommend you do to just in case. My doctor felt for lumps and thankfully said I didn't have a DVT. Do your best not to panic (although I'm one to talk). If you have any lumps visible go to your emergency room immediately although just remember that you are already on treatment and if you seriously suspect DVT keep movements minimal. Best of luck Hopefully it is nothing.

My leg has been hurting a lot too. I find the 30-40 compression stockings help but then it hurts when I take them off. I took a stocking holiday over Christmas too and by the third day, my leg pain was excruciating. @lifeat27, are you wearing stockings?

When in doubt, head on over to the ER!!!!
I know it's a pain to be there, but it's better then NOT knowing and being TOO LATE.

Can you measure your leg to see if it's even slightly swollen? ITA that if you are seriously concerned a trip to he ER would be ok, although I believe you're covered if you are on the shots, at least from the clots getting bigger.

Btw, is the pain in the front or back? I get pains on the side of my thigh every now and then and I've been told hats not DVT. Not sure what it is, but been told its not DVT.

If you're on shots, you should be covered from getting any new clots. Hard to say about what it might be.

For me generally, I measure both legs around and if the painful one is an inch more than the other one, I head for the ER. If you can't do anything without thinking about it, I would just go in. Usually when they hear the word "bloodclots" you get booted to the front of the line.

Thanks everyone, the pain is still there. From reading other posts, I knew that other people measured their legs when they felt pain and I measure them last night and this morning and they are the same size. The pain is shooting on the back and out towards the left side of my thigh. I am not wearing compression stockings, but thinking about it. Where would I find those? Not even sure where to start.

I also started my period in the middle of the night (sorry if this is TMI for the guys) and I woke up with the worst cramp pains I have EVER experienced. I have always had really bad cramps and taking the highest dose of ibuprofen has helped, but now that I can't take that I turned to my Norco, which is kind of helping. Has anyone else noticed heavier bleeding and more painful cramps on Coumadin? Geez, just getting the hang of this whole recovery process is horrible. You think you are so lucky to have survived and then you realize that it is just the beginning of this awful journey. A real downer. Sorry, trying to be positive most days, but some days I just can't find a positive side.

My compression stockings required a prescription but I have seen them on eBay. My specialist recommended 30-40 weight. They are very challenging to put on but worth it if they diminish pain. Mine are $165 a pair but I can get 9 pair per calendar year paid for by my benefits. Maybe ask your doc about them.

I picked my first pair up at Walgreens for $25 or so. Probably any regular drug store would have them if you want a quick fix.

For longer term, specially fitted is always nice.

I have had considerably worse cramps since being on Warfarin and the bleeding is VERY bad. I was also prescribed Norco..It seems to help but only for about an hour or so and wow it makes me really loopy. You have to watch the amount of blood you lose if you are bleeding heavily, don't want to become anemic. Good luck..Hope yours is better than mine have been.

Thanks Geier, yeah it was a little scary how much I was bleeding. Glad someone else is having the same issue with the cramps, then it seems more acceptable to me. I will definitely be mentioning it to my doctor on Tuesday.

Another weird thing I have had the last two days is my entire right forearm (and the forearm only) is really sore, like as if I overworked the muscles. It is so strange because I haven't done anything too strenuous and can think of nothing that would have caused this. It isn't like the other pains though, just as if only the forearm on my right side was worked out. Anyone ever had this?

Gee, I'm getting scared reading some of the replies here since I started having some pain in my left leg about an hour ago. You see, on Xev. 16th I went to the ER because I had pain in my right calf with no known cause. I think I had googled leg pain and had seen where you have to be careful about blood clots and pulmonary embolisms. My leg wasn't hot or swollen. I measured it and it was maybe 1/4 larger than the other. They told me at the ER that I probably had a baker's cyst behind my knee. I insisted that it was most likely a clot and told them that I think I had a cllot in my lung months before when I had severe shortness of breath and was coughing up blood (and was told to take antibiotics). An ultrasound showed a blood clot in my right leg and I was immediately hospitalized. A VQ lung scan showed a blood clot in my lung. I was released from the hospital on 12/18 on Lovenox injections and 5 mg. Warfarin that was eventually increased to 15 mg. It took awhile to get the Warfarin at a therapeutic level (last Weds) and they had me stop the Lovenox injections then. So, am I not protected if what I'm feeling in my left leg is a clot? TheWarfarin is no protection?

Yes!! I have had that...Just a few days ago actually. Both my arms hurt like I'd been lifting something or doing some strenuous activity..But no...I've done nothing. The pain went away after a day or so...Strange!!

@lyncrts

If you are therapeutic on warfarin, you should not be forming new clots. Your body is working to dissolve existing ones. The warfarin is just as effective as the Lovenox and a LOT cheaper. Even if you have a clot in your left leg, your treatment would not change.

It is possible that you're walking oddly because of pain/swelling in your clot leg and that is likely to cause pain in your other leg. Keep 'em both elevated and take it easy for a while. Clots are hard on the body.

I feel blessed, no pain. Just very tired at the end of the day. Of course I haven't had my first INR yet.
But after going throug a year of hell witi afib, thinking each day was gonna be my last, this is scary but doable. I am not ready to lay down and die. I did 2 miles walkng this AM and will show up for my yoga class that I've been missing. I sure appreciate all the wonderful information.
Before this happened I knew nothing about PE and I mean nothing

God bless you all for being here and sharing your experiences.

Dee

@ TossNTurn...

Thanks so much for your reply...what you said was helpful to me. I think I was concerned about possibly not being at a therapeutic level as I've only recently reached a therapeutic level on the Warfarin and then was too high and my dosage had to be lowered and hadn't been checked again yet. I put in a call to my doctor yesterday morning and he called me back immediately (even tho the office is closed) and was reassuring (except for the part where he said that you can technically throw a clot at 2.4, but he doubted that I would) and just told me to go over for my blood test that I was already scheduled for. I had the blood test and he called me a couple hours later and said that I'm at 3.0 which is where he wants me. Whew!