Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
I went for my first lot of tests today and the haematologist told me that he would advise me to be on warfarin long term. I'm happy about this in one way as the thought of coming off it scared me but in another I resent the fact I have to rely on it to stay well. I know he meant well but I'm a tad tired of being told "you were very lucky"
Needless to say my veins were playing peek a boo, 1 popped up but then collapsed. Can't say I blame it as I almost collapse at the sight of a needle! My hand at last gave the blood but man it hurts having it there.
Hope you're all having a good day :-)
Karen xx
Needless to say my veins were playing peek a boo, 1 popped up but then collapsed. Can't say I blame it as I almost collapse at the sight of a needle! My hand at last gave the blood but man it hurts having it there.
Hope you're all having a good day :-)
Karen xx
I'm a recovering needle-phobe, too :-) It's strange now as we seem to be headed for a new career as pin cushions.
Hope your veins make a good come-back for the next session!
Know how you feel. I freaked a bit when I was told I will most probably be on for life too. Actually no one has actually used those words, they call it extended coagulation but I am sure that is 'NHS 'for forever lol!
I am used to the idea now and it no longer bothers me much. As one doctor said you have more of a chance at treating a bleeding episode than you may have with another PE.
Someone on here advised me to treat myself to a nice bit of medical alert jewellery. It did help doing a bit of retail therapy. There are some nice necklaces and stuff available. And of course you need more than one to match different outfits!
My veins tend to misbehave too. Have one reliable one but dont what will happen when that one decides its not gonna play anymore!
Take care
Kate x
Basically, I try to think of that daily dose as a minor inconvenience (which it is) compared to the alternative of being already dead. With having been ultra-fit before the episode I came back well and do appear healthy in the eyes of the world. I can still carry myself 10s of miles on my own two feet, slow or medium-fast, and do many things that healthy men half my age would not even think of. I just do not know how, in the course of life's potential for many changes, I will accommodate the need for medical attention once a month.
Basically, it has been a year now, and a good year at that. It will not hurt to carry on one more in the same fashion, then another, and another if luck holds out. If we last, then perhaps there may come potential for our systems to adjust, for unexpected delayed improvements, or for new treatments as they become available. We do not have to think of it as "forever" or "lifelong", just "indefinitely".
I definitely agree Kate, I'm relieved to be on warfarin, my inrs been stable for a while and it's definitely worth it for that extra peace of mind.
Like More2 says, who knows what they may come up with in the future :o)
Well I suppose we should have something to show for our troubles. Think it was a bit Psychological for me. Wasnt going to get one till I knew that I had to stay on the warfarin. But now I want to buy more!
Any excuse
Kate x