Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
Help!!!!
My dr decided to put me on a maitanance dose of coumadin for the remainder of my time on it. It has been about 9.5 months since my pe, and although not officially i am technically w/o the protection of coumadin. I am on 2 mg which my hemo explains is pretty much the same as a baby aspirin. I have been feeling ok. However, I have done some really intense house scrubbing sat all day and I mean ALL DAY. On sunday I woke up and my legs ached a little and my chest ached a little. In all honesty I do not think I am a mean clotting machine, and that this is a clot. However, anxiety has once again taken over my body and I feel like im back to square one... every pinch in my leg, every twinge or ache in my chest and I get so scared. I would really like some words of encouragement from my friends. Im scared! !!! Im exited that I do not have to watch my diet and got for inrs anymore, but now im so scared without my security blanket. Family doesnt understand, I need someone to help me feel ok, im struggling right now. My legs and chest feel better but its not completely gone, and i dont think the anxiety is helping.
I feel a panic attack coming on. I have had genetic tests done twice and nothing came back being wrong, many of you know my clot was caused by Yaz. My hemo had a huge smile on his face and said id be fine and that things were going to be back to normal before I know it.
I have had upper body aches since my pe when i do a lot of physical activity and that has been attributed many a time to muscular pain that will lesson over time. I havnt had a chest ache in a long time. But after overhauling the house i have one ugh. My dr wants me to come back ina month for a d-dimer, Im so nervous... and scared I knew this would happen I knew I would face anxiety when this time came but jeez it has really hit me, please guys chime in with some help.
Thanks
Ashley xoxo
My dr decided to put me on a maitanance dose of coumadin for the remainder of my time on it. It has been about 9.5 months since my pe, and although not officially i am technically w/o the protection of coumadin. I am on 2 mg which my hemo explains is pretty much the same as a baby aspirin. I have been feeling ok. However, I have done some really intense house scrubbing sat all day and I mean ALL DAY. On sunday I woke up and my legs ached a little and my chest ached a little. In all honesty I do not think I am a mean clotting machine, and that this is a clot. However, anxiety has once again taken over my body and I feel like im back to square one... every pinch in my leg, every twinge or ache in my chest and I get so scared. I would really like some words of encouragement from my friends. Im scared! !!! Im exited that I do not have to watch my diet and got for inrs anymore, but now im so scared without my security blanket. Family doesnt understand, I need someone to help me feel ok, im struggling right now. My legs and chest feel better but its not completely gone, and i dont think the anxiety is helping.
I feel a panic attack coming on. I have had genetic tests done twice and nothing came back being wrong, many of you know my clot was caused by Yaz. My hemo had a huge smile on his face and said id be fine and that things were going to be back to normal before I know it.
I have had upper body aches since my pe when i do a lot of physical activity and that has been attributed many a time to muscular pain that will lesson over time. I havnt had a chest ache in a long time. But after overhauling the house i have one ugh. My dr wants me to come back ina month for a d-dimer, Im so nervous... and scared I knew this would happen I knew I would face anxiety when this time came but jeez it has really hit me, please guys chime in with some help.
Thanks
Ashley xoxo
My prescription is for: No. More. Housework.
Heh. That should cure the aches and pains.
Tell family/girlfriend that Dr. Beecute told you so.
I'm rooting for you.
You can do this!
Every day it will get easier.
And you will need the "safety net" less and less.
You are a survivor!
And the evil YAZ is long out of your system.
Without that nasty stuff, you should be fine.
To quote Winnie the Pooh:
You are you are braver than you believe, stronger than you seem, and smarter than you think.
A brief hijack from your original post/request:
Not to distract too much from your original post, but I'm with Retired Navy...
The question is more of what your INR is on 2 mg of coumadin than what the dose is...
I only take 1.5 mg of coumadin a day to have an INR between 2-3 because we all metabolize it differently. I happen to not need much. A dose of 2 mg per day would actually be too high for me..
I think that's why they call it "low intensity" rather than "low dose" coumadin treatment.
your countdown to the end of rat poison is getting so close!
i am excited for the close of this chapter in your life.
you are so creative and fun and have a whole coumadin-free life ahead of you!
i'm rooting for you as you deal with the anxiety of going off.
keep posting and we'll keep cheering you on...
i'm so glad we have others on here who can share their success stories of going off.
(i think i was just trying to explain it for others who might be reading who might be new and may not understand about doses and INRs.)
Even though I'm still on coumedin(and might remain on lifetime because I have so many specialists that can't agree on what to do with me- uggh!).... that's for another post- I completely understand what you must be going thru. I still have anxiety and as I write this post.... still having twinges and pains in my legs and chest. I wish I could just relax and forget about my PE's. You're doing great and the d-dimer will give you another boost in the next month. Before you know it.... you'll probably be completely off for good! Hang in there girlie!!!! :)lori
So sorry to hear that you're feeling so anxious, but it is totally normal. I have not been on DS for a while whilst I try to heal and move on, but I will always be in touch and I always check in. I have to say when I read your post it was like you had typed exactly how I was feeling. You are so honest with your feelings and I am sure you mirror what we are all thinking at one time or another.
I gave been off the meds now since oct 20th and I have been doing really well. Although I am going through a rough patch now, and so I have come back to DS to help me through - this is what you will do - have good times and low times, but each low time gets less worrying and further apart.
I have just been to see my Dr and I felt really patronised by her to be honest. I still have chest pains and leg pains (that pinching you spoke about), but I have had a doppler, echo and lung function tests which came back ok. So I guess the pains are still down to the old PE damage or stress. Anyway, I will not highjack your post with my own stuff, I will write another post, but I wanted to reassure you in that you have made great progress and life will get better. You have a great Dr who is looking after you and that is such a blessing - you're only going to get stronger, but always come back here for your wobbles and we can wibble wobble together.
Love Dawn x x x