Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
puterdoc2
I know I can't be the only single parent of 2 children (ages 4 and 5) out there to have a MASSIVE Double Pulmonary Embolism. I was diagnosed exactly 1 month ago today. How do you cope with this? My kids have been staying with my sister for a month and she is taking care of them because I do not have the energy or strength to give them the attention they really need and want. I can't even stand at the stove to make breakfast or dinner either. I get out of breath just walking from my reclyner to the bathrrom 15 feet away. I am on oxygen 24/7. I am on the fentanyl patch 75mg and dilaudid 2mg every 4 hours as needed plus some other very strong medicines. I sleep all the time.
Prior to my PE, I was working 60-70 hours a week since January. I was able to play with my kids and take them on road trips, vacations, we have a swimming pool I can't even get in with them right now. I was cooking dinner every nite and now its either cereals or something else thats easy that my taste buds can stand. This is suppose to be getting easier and easier right? Well, IT'S NOT!!! I am not getting any worse, but I am not getting any better either. I just want mine and my kids life to get back to some sort of normalcy and it seems like its never gonna happen? What to you all do? Who helps you with your kids? Do you have the energy to do it yourself? What about cooking, cleaning, etc.... Please help, any advise is greatly appreciated! Thanks all
Prior to my PE, I was working 60-70 hours a week since January. I was able to play with my kids and take them on road trips, vacations, we have a swimming pool I can't even get in with them right now. I was cooking dinner every nite and now its either cereals or something else thats easy that my taste buds can stand. This is suppose to be getting easier and easier right? Well, IT'S NOT!!! I am not getting any worse, but I am not getting any better either. I just want mine and my kids life to get back to some sort of normalcy and it seems like its never gonna happen? What to you all do? Who helps you with your kids? Do you have the energy to do it yourself? What about cooking, cleaning, etc.... Please help, any advise is greatly appreciated! Thanks all
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When I first came home, my Dr.'s office called. They asked if I had help coming in. At first I though it was because I came on on Lovenox., but they were talking about cleaning etc... (my family did help out.) I'd see if you insurance will pay for help?
I think putting all this pressure on yourself to continue to do it all, right now, doesn't do you any favors. You do the best you can, and if that means your house isn't clean, so be it. If that means just doing ONE task a day for now, then that's all you do until you can build up some stamina. If that means eating cereal or spaghetti or whatever else is easy or tastes good for a while, that's ok.
Ask for help if you need it. Talk to someone if that would help you cope. Be kind to yourself.
I am sorry you find yourself in such a bind, but please be reassured that it will get better. This is an excellent resource for you to have found and you will receive good advice and encouragement from everyone. I certainly felt that my life would never return to normal. I was in the hospital for three weeks after PE, and when I came home from the hospital, I had a hospital bed in my living room, a walker to get around with, so many drugs to take we needed a massive chart to detail it on, and 9 week old twins to care for. I had nurses coming in to my home constantly to care for me, and couldn't even dream about caring for my children. I spent many hours staring at the ceiling thinking that my life as I knew it was over. Yet, 18 months later my life is almost back to normal. It took me a year to feel myself again and another six months to have enough energy to venture out on a day trip on my own with my children. For the first while I had constant help from my husband and family to help with the babies and with me. We also had support from our local congregation. It was difficult for me to accept the help. Prior to PE, I was fiercely independent. If one good thing came out of PE, it was that I learned to rely on others and accept help. I spent many hours looking after my children from my bed, so to speak. I became creative. I sang to them(as best I could with weak lungs), read to them, and spent time holding them while I watched t.v. I didn't have much energy and found that the passage of time was the only thing that helped with that. I didn't cook or clean much at all. Only the very basic necessary needs got done, and it was mostly by the graciousness of family and friends. I learned to prioritize my energy use. If something had to be done it was the first thing I did with the bit of energy I had. I recall my OT giving me a suggestion of getting up to get my medication myself once a day and slowly work that up to getting up to get my medication all the time. I believe it was around the two month mark that I started to realize that things were changing and that I could have a shower without assistance. Be assured that it will get better, but don't be too hard on yourself or expect too much. Accept all help you are offered, and that cereal, toast, bread and butter for supper is completely acceptable.
Take care and keep us posted,
Lydia
Try to stay positive