Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
i am in complete shock my last clot was oct 13 2010. i did not come home with oxygen. over the past month i was put on o2 at night and not full time.now it is full time,
things kept getting worse and worst. i have been so tired, running fevers on and off for weeks at a time. my joints are in in excruciating pain. i have been so baffled. i have also become severely anemic. no matter how much iron gets put back my numbers keep getting lower. i have this wonderful pulminolagist that does not know how to give up he has been testing me to death. i have believed all along if anyone was gonna find the full answer it would be him. well today i had four test scheduled one of which is called a bubble echo it put air bubbles into the heart while echoing it and he found a big hole. i learned a new one today we are all born with a hole in the heart but most of them close right away and some cause no problem like mine until it gets hit by the pressure caused by blood clots then starts causing all the symptoms i have had like shortness of breath,need for 02, tired and a host of others i have written off to other things. now i only met the cardiologist the impression i got from someone trying to avoid questions until he and the pulminoligist,infectious disease and confer and set every thing up . i do know for sure i need heart surgery but he wasn't able to tell me what kind.open or closed. i am so scared, perplexed at the life a clot can take. scared of surgery #+++++++++++. the cardiologist. he said it is urgent that it is done within the next week or two.
things kept getting worse and worst. i have been so tired, running fevers on and off for weeks at a time. my joints are in in excruciating pain. i have been so baffled. i have also become severely anemic. no matter how much iron gets put back my numbers keep getting lower. i have this wonderful pulminolagist that does not know how to give up he has been testing me to death. i have believed all along if anyone was gonna find the full answer it would be him. well today i had four test scheduled one of which is called a bubble echo it put air bubbles into the heart while echoing it and he found a big hole. i learned a new one today we are all born with a hole in the heart but most of them close right away and some cause no problem like mine until it gets hit by the pressure caused by blood clots then starts causing all the symptoms i have had like shortness of breath,need for 02, tired and a host of others i have written off to other things. now i only met the cardiologist the impression i got from someone trying to avoid questions until he and the pulminoligist,infectious disease and confer and set every thing up . i do know for sure i need heart surgery but he wasn't able to tell me what kind.open or closed. i am so scared, perplexed at the life a clot can take. scared of surgery #+++++++++++. the cardiologist. he said it is urgent that it is done within the next week or two.
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Look at what my best friend did with my picture!
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We all have 24 hours in a day. How we spend these hours is important. Watching a little bit of a video about how sitting affects us made me aware of how much sitting and laying down I do. Gonna have to work on that.Your turn. Tell me another truth.
Best wishes! Keep us posted on how you are doing!
I know at least two other people who also had the PFO surgery, and are both fine. It's of particular interest in the scuba diving world, because it allows bubbles to pass into the blood stream, which is the mechanism for decompression sickness or the bends. People that get bent for no reason often have a PFO.
I had a PFO test as part of my dive doctor's post PE work up to approve me for diving again.
It's a fairly common procedure that I believe has a very high success rate.
Good luck
Chris
http://my.clevelandclinic.org/services/endovascular_patent_foramen_ovale_pfo_closure/hic_how_is_a_patient_foramen_ovale_pfo_closed_using_catheter_based_procedure.aspx
thank you for you info.it was a huge help. i was speaking with a different cardiologist yesterday and he was looking over all the tests the have been done lately. he mentioned his concern about all my allergies and the patch being made out of nickel as the Cleveland article mentioned. the first thing i thought is oh great i am very allergic to nickel, so the surgeon that is going to do the surgery has to look farther in to if this particular patch will work or if their is one that is made out of something other that nickel or if is has to be done the hard way. what ever they have this one made of i have a feeling if would be fine. just anxious to get it over with to get off the oxygen.