Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
pubbypaws
Hey guys, just a quick update. So I finally got my hematology reports back. All known clotting factors have been ruled out. The only closing factor my doctor came up with is "trauma". How much trauma is required for my body to clot can obviously vary from person to person and the fact that I got into a major fender bender 2 weeks prior could have been a trigger.
Furthermore, my doctor highly recommends on moving forward and such ways of doing so by building self confidence overtime. She spoke the average person makes about 5 ER visits after having a PE once. (Gladly i only been twice, and have been much confident about my own state of mind).
She also gave me factual studies of her patients and other information pertaining to PE. Such information includes, other of "her patients" who tested positive for either Factor V, and/or other Genetics disorders have never clotted. Is it possible that they will never clot even with such disorders, possible, but not unlikely. Those patients she mentioned were there for other reasons and testing for other complications.
Then there are patients like me, who have tested negative on all "known" clotting factors but have clotted for random reasons. Some of which perhaps even modern science have yet to discover. But as of speaking, she said primarily to focus on recovery phase and continuing to build that confidence and that its okay to go to the E.R and to pay attention to similar symptoms.
After a similar visit to ER few weeks back before my hematology was a testament to the very same thought. "How confident are you to not clotting, after having clotted before?". I think to each and their own, and knowing your own body matters very much.
I've finally been back close to my normal self, i'd say >90% (if you even even measure that). Back training at the gym and continuing grinding away :). I hope everyone stays vigilant and remember baby steps at a time!
Furthermore, my doctor highly recommends on moving forward and such ways of doing so by building self confidence overtime. She spoke the average person makes about 5 ER visits after having a PE once. (Gladly i only been twice, and have been much confident about my own state of mind).
She also gave me factual studies of her patients and other information pertaining to PE. Such information includes, other of "her patients" who tested positive for either Factor V, and/or other Genetics disorders have never clotted. Is it possible that they will never clot even with such disorders, possible, but not unlikely. Those patients she mentioned were there for other reasons and testing for other complications.
Then there are patients like me, who have tested negative on all "known" clotting factors but have clotted for random reasons. Some of which perhaps even modern science have yet to discover. But as of speaking, she said primarily to focus on recovery phase and continuing to build that confidence and that its okay to go to the E.R and to pay attention to similar symptoms.
After a similar visit to ER few weeks back before my hematology was a testament to the very same thought. "How confident are you to not clotting, after having clotted before?". I think to each and their own, and knowing your own body matters very much.
I've finally been back close to my normal self, i'd say >90% (if you even even measure that). Back training at the gym and continuing grinding away :). I hope everyone stays vigilant and remember baby steps at a time!
rmb
Sounds like you have a very astute doctor with a lot of PE experience which is a GREAT asset. Glad your tests came back negative. The future is bright and it's all there for you!
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