Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
Hi all,
I need Help with understanding why my INR keeps going up and down....last week it was at 1.2 then crept to 1.9 by Friday...today monday, back down to 1.6....the clinic dr. doesn't know what to make of it but I get to continue to have lovenox shots(which I hate) and more dosage of coumadin...I will take 7.5mg....but I am going crazy...why is this happening to me...I am not eating any greens...I have no energy to even go to Target,....I don't know how to handle this...I hate the shots...I hate having to go to the clinic every other day to get blood drawn...I am covered in bruises....I can't handle this...what to do? Anyone out there know? How do I handle this? Is there something I could have that the dr. doesn't know about...another blood disease? I am sooo tired and now just really worried.
I need Help with understanding why my INR keeps going up and down....last week it was at 1.2 then crept to 1.9 by Friday...today monday, back down to 1.6....the clinic dr. doesn't know what to make of it but I get to continue to have lovenox shots(which I hate) and more dosage of coumadin...I will take 7.5mg....but I am going crazy...why is this happening to me...I am not eating any greens...I have no energy to even go to Target,....I don't know how to handle this...I hate the shots...I hate having to go to the clinic every other day to get blood drawn...I am covered in bruises....I can't handle this...what to do? Anyone out there know? How do I handle this? Is there something I could have that the dr. doesn't know about...another blood disease? I am sooo tired and now just really worried.
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Look at what my best friend did with my picture!
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We all have 24 hours in a day. How we spend these hours is important. Watching a little bit of a video about how sitting affects us made me aware of how much sitting and laying down I do. Gonna have to work on that.Your turn. Tell me another truth.
I had my PE 10 June and went through exactly what you are going through now. My INR was all over the place but never past the magic 2.
When I came out of hospital they told me I'd be doing the clexane (UK version of lovenox) injections for probably about a week. Actually it turned into 39 days - wth me getting more and more tearful every time I went for another blining blood test. I am a lifelong needle hater too - I was always the one who fainted at school after innoculations etc. My tummy looked like a map o the underrgound, and I was running out of possble needle sites.
Truthfully I think they had been trying to keep me on as low a warfarin dose as possible. I had a couple of weeks of "try 3mg Mo to Fri, and 4 on sat andSun" then try alternating 4m nd 5mg" --- before my INR clinic nurse and doctor just put me on a straight 5mg --- and hey presto.
Hang on in there - I know it's rotten, but I am sure it will come right eventually. I really feel for you
I went through this same exact thing, even while I was in the hospital. My doc said I was warfarin resistant. Some people just are. It just means that for some people, they may need more warfarin to get, and keep, therapuetic.
Also, I understand wanting to because I did it too in the beginning, but it doesn't make sense to just stop eating greens. You need good food to feel good. The goal is to eat consistently and in moderation. I'm sure the fact that you are so worried about what you are eating is adding to your stress.
I've been where you are. I really have. It will all work out. You just need to be patient and get in a good head space about it and ride the rollercoaster.
You survived a PE. If you can do that, you can get through this!