I was off of it briefly for about 6 weeks and My hair stopped coming out within a few weeks I think. It definitely started growing back.

I wasn't aware of any hair loss with Warfarin. From your posts it sounds like this happens when you come off the Warfarin and not when you are on it. How noticeable is the hair loss?

I did a little more poking around and I think I understand a little better now. Some people experience hair loss while on the Warfarin and then once off the medication the hair loss eventually stops.

This sounds like a not-so-pleasant side effect. I hope it reverses itself soon for you.

Right. And yeah, not everyone experiences that.

Hi, I've been on Warfarin since March and I will have to be on it the rest of my life (I'm 32) My hair used to be long, thick and beautiful. Now I don't want to brush or wash it cause HUGE clumps come out. Well, the they come out even if I don't do anything.
My hair was my thing. It was the only physical thing about myself I liked. And it had to be long, I never had it short because I hate short hair styles. I was on disability and broke anyways but now with extra medical bills it is really bad so no wig or extensions for me.
Any cheap suggestions?

Do you have bald spots or is it just that it's thinner. If it's just thinner, a good trim with a couple of inches off can make it feel healthy and thick. I keep my hair just above my shoulders. I can still wear it in a pony tail, or up if I want to so it's shorter long style. Also you can experiment with your part. Sometimes changing it to a different side can make a difference. Dry shampoo can make it feel thicker too.

I'm a warfarin lifer too and actually, the hair loss has slowed down over the years and kind of comes out sporadically. I just try to keep it as healthy as possible with regular trims.

Hi RMB, well it just recently started and boy did it start with a bang. For now it is just extremely thin. It's almost like it's not even worth putting in a pony tail. My hair was always down to my butt except once when I cut it several inches and it was only to my mid back and I was devastated. When I have to have shoulder length I don't know how I will cope. This is worse than flat lining 2 times in the hospital or needing 3 blood transfusions. I pray to win a small lottery so I could buy extensions or a wig.
Thank You for your support.

Batgirl,
I feel your pain. I know it sounds really superficial, but I loved my hair too. It really was the only thing about myself I really liked and it grew really fas and thickt. I would grow it out and every 18 months cut off 12 inches to donate. It used to take me 2 hours to straighten it, now I can do the same job in less than 15 minutes. :( 5 years ago when I started taking bc pills, it started falling out and I lost more than half my hair. I've lost even more on warfarin, and am so NOT happy with the situation. I've already had to resort to short hair, which I hate. I am really hoping without the bc pills and warfarin I can get at least some of my hair back. I've resorted to only washing my hair 3x/week, as it seems for me I lose the same amount every time I wash it. Maybe that's just in my head, but at least I don't have to pull out the handfuls of hair everyday. Now, I would gladly take no-hair over all the anxiety I have post PEs. I would happily shave my head and walk around completely bald if I could just get a grip on this blasted anxiety!

It's unnerving yeah, and while I can empathize for sure, I suspect people who have lost loved ones to PEs would give anythimg to have them back, thinning hair and all.

My husband's employer has a 4 year old daughter with alopecia. Try that. I'm not saying we don't have a right to bemoan hair loss, but it's important to try to keep it in perspective

Yeah, that's awful, but that does not mean that the pain here around hair loss is less for people here.

As of now, my braid is a third what it used to be. huge clumps are coming out when I shower or brush and periodically during the day, I am running my hair through my hands to grab the stuff that's falling during the day.

when i look at my health history and EVERYTHING that's happened, I am lucky i have hair at all, and so the odds of it 'getting better' aren't so good. and growing out will take years. literally.

assuming it grows out again, and does not just keep going like this because of ongoing health stressors.