Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
Hello everyone.
Has anyone here gone off of warfarin or other blood thinners even though they tested positive for a genetic clotting disorder? I have Factor V Leiden I, but my Hematologist believes that I will be better off without the blood thinning medication? He said that I should be ok with a regimen of aspirin 81mg daily. This is a very difficult decision for me to make. I'm trying to weigh the pros and cons with this. Any suggestions/ideas? Thanks.
Indwen
Has anyone here gone off of warfarin or other blood thinners even though they tested positive for a genetic clotting disorder? I have Factor V Leiden I, but my Hematologist believes that I will be better off without the blood thinning medication? He said that I should be ok with a regimen of aspirin 81mg daily. This is a very difficult decision for me to make. I'm trying to weigh the pros and cons with this. Any suggestions/ideas? Thanks.
Indwen
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Look at what my best friend did with my picture!
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We all have 24 hours in a day. How we spend these hours is important. Watching a little bit of a video about how sitting affects us made me aware of how much sitting and laying down I do. Gonna have to work on that.Your turn. Tell me another truth.
If you don't get any responses here, you may want to try posting on the DVT board to see if someone is or was in a similar situation.
http://www.stoptheclot.org/documents/FactorVLeiden-lw.pdf
Appears your doc was right, so no decision to make? As usual, its a balance of risks and having factor V increases the risks, but its certainly not a cert that you'll have a recurrence.
Aspirin may have a minor anti coag effect, although some tests say it has no effect. Personally, I wouldn't bother, but I can understand if people do.
I would probably be concerned, and coumadin is inexpensive. I think the blood workups are around $35 per draw. What I would be asking is how much of a risk the Factor V Leiden 1 is compared to other disorders. I would need some numbers to put it in perspective.
Let us know how it works out.
Mike
Indwen
http://patientblog.clotconnect.org/2011/12/12/aspirin-%E2%80%93-does-it-prevent-dvt-and-pe/
The results do vary a bit between studies. The real measure is the number of recurrences while on the drug and this needs to be balanced with bleeding/bone loss/... side effects. Aspirin reduces the recurrence risk a bit, although not nearly as much as the standard anti coags.
BTW indwen, I'm not factor v positive and my attempt to stop warfarin was rubbish :-), so the above was just what I'd read in several places. But the opinion seems to be that while factor v raises the clot risk a bit, best advice is not to stop on warfarin after 1st set of clotts.