Hi RL-

Sorry to hear you are having a bad day. On the upside, at least you have some good days!

I am in a similar place - had my PE a couple of months ago and trying to recover.

My father had a PE two years ago. He is 70 and has made a complete and full recovery. He had it pretty bad, too. He was in the hospital for weeks and had to be on oxygen. He said he never felt right while he was on warfarin. So take heart - you are going to be OK. There are times it doesn't feel like it, but you are on the road to recovery. Your body will heal itself.

As for the bone or cartilage fragment in your knee, there is no way that is going to get in your bloodstream! Take some deep breaths and relax (so easy to say, yet so hard to do).

I do know exactly how you feel. I have not been myself and keep having weird symptoms. The past few days my right thigh has felt like it has run a marathon, while my left feels completely normal. I have not exercised that much, and certainly nothing on the right side. Add in the lung and chest pain and weird heart rates and I am a mess.

You're not alone, but you are OK.

Hope your day goes better!

Hooooo, medulla - hope your INR is ok! You might want to get that heart rate checked out...

r6leslie, what's with this knee thing? I'm no medic, but I can imagine that if your bone/cartillage is big enough to be seen in the mri then it's too big to travel through your blood and get stuck in your lungs ;-)

Just take care that you are adequately anticoagulated and give your doc so you don't go crazy because after surviving the PE that would be a real shame, wouldn't it?

Hi,
I definitely understand how you feel. Some days are just overwhelming. Last week I had a day where I just sat on the kitchen floor and cried while my kids watched tv. When their show was over, I took a deep breath and moved on. I'm on antianxiety meds but it doesn't feel like they've quite kicked in yet. If nothing else, at least you know you are not alone. My friends brother just died of Leukemia at age 39. He lived with the diagnosis for less than a year and left behind two small children. Although something bad happened to me, (well, a couple of bad things in a relatively short amount of time) at least I'm here and I'm not in constant pain.

I hear you girl. I cry almost every day, and on top of the PE, I have steroid myopathy and damage in both knees due to the damn prednisone. I think it caused my PE too. I shouldn't have even gone on the damn crap! I cant even walk, so just know that some are worse off than you, and yes it all sucks! I wonder why me too. But we have to pray it will pass and we will heal. I guess it is just a lot longer a road than we had imagined. I always considered myself healthy with no issues at all , and now like a 90 year old. Let's just hope it is a bad bad space of time and can only improve. Health to us all!

AWE we all need to vent at some time during our recovery! I hope you feel better and soon!

I feel your frustration. I am 5 months out from bilateral pe's post surgery...had been going along pretty well with my breathing and then boom...this past week has been tough..have had lots of bouts with shortness of breath...wondering where it's coming from? Thought I was so much better. This feeling of backsliding is so frustrating...and I also cry quite a bit...just want my life back. But then I try to pick myself up...brush myself off...and start over again..thankful that I'm still alive. I'm supposed to be going off warfarin in a few weeks and I'm very scared. Hoping all turns around for you and just know that you are not alone. Take good care!

Sorry for your back slide. It is so frustrating and painful, but know that this to will pass. I am sure in a couple of days if not sooner you will feel better again. Hate this stuff for what it does to challenge us continuously. 2 steps forward, 1 step back, but then 2 steps forward again. I can handle the pain, but the anxiety really gets me and the fear of the unknown. Just remember we are survivors and have gone through the worst of it. We can handle the rest. It will take time, but we will come out of this. So, be gentle with yourself and get some extra rest when you backslide and save a little special treat to bring you up on those occasions. Mine is some chocolate cake eaten in my bed with a warm heating pad over my chest, ear phones plugged in listening to Andrea Boccili. Not sure what yours may be, but when you are having a good day, fiugure out what would be special to you and bring that about when you are having bad day or two. TAke care and hope today is the day you are feeling better.

Seems like the side effects from meds and complications like anxiety make this whole situtation worse. Our physical and mental beings are on a rollercoaster and you never know when you're going to feel good or bad no matter how hard we try to figure out what causes a good day verses a bad day. Especially frustrating when you try to do something that is "normal". I like Richard's idea of eating chocolate cake in bed with a heating pad (for those with lingering chest pain) and listening to a favorite song!! But some days even the most insipirational saying or encouraging words don't do the trick, but we can always try tomorrow. Hope the good days out number the bad and you keep moving forward:)

I've had bad stomach pains for two days (endo?) and am now lying on the sofa, curled around the cat (my heating pad) and eating Reese's pieces from my recent trip to the States. Gotta love chocolate! I can strongly recommend it to everyone ;-)
Hopefully tomorrow things will be better...

Thank you all......you are all great, I am ever sooo blessed to have you in this world, my world.....thank you, I get through with you guys and appreciate the words of encouragement soo much!

RL