Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
clarkjulieann
As far as I know I'm on a 6month course for 1st dx of a PE and my dr has given me some restrictions like no to certain meds, stay away from activities that can cause bleeding, try to limit foods high in vit k, limit or if possible dont drink alcohol, no smoking or try to cut down/quit, try not to take long haul flights/drives etc but for anyone on warfarin for life how much of those restrictions actually carry over?
I'm asking out of curiosity as for us with short term treatments those restrictions pretty much lift once our course is over and we'd try to move on. I'd also imagine, if on warfarin for life, you and your drs would want you to lead as much of your regular lifestyle as possible rather then living a life fit around warfarin, correct?
I'm asking out of curiosity as for us with short term treatments those restrictions pretty much lift once our course is over and we'd try to move on. I'd also imagine, if on warfarin for life, you and your drs would want you to lead as much of your regular lifestyle as possible rather then living a life fit around warfarin, correct?
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When I was on for only six months, I did follow all that stuff, but as a lifer you realize you just can't live your whole life without salad. Some meds are necessary to take, even if they will affect your INR.
Mostly, yes, my mindset switched when I became a lifer. We adjust the dose to my lifestyle. If I add a drug that'll affect my INR, we adjust my dosage as needed. I try to eat veggies on a regular basis. I mean, I wouldn't decide overnight to go vegetarian without talking to my doctor, but it could be done if I wanted to. Lots of folks partake in "dangerous" activities like hockey, skiing, and off-road biking. Many of us drink alcohol.
I also tend to do quite a few road trips and long flights. I just wear my stockings and stay hydrated and it isn't really a worry. Really, if everyone would do that, we'd probably have fewer clots in the world.
And really, you don't even have to have those restrictions for short-term treatment. It is kind of old-school thinking to take you off stuff while you are on warfarin. More and more docs are making you aware of what can affect your levels, but then just sending you out into the world to live like normal. They'll adjust the dose to your life.
And really, I think that is better all around. You're dealing with a major health event. You have enough to deal with without analyzing every morsel you put into your mouth.
Even if you are on the stuff for life, some doctors will still tell you have to limit vitamin k and make all these concessions for being on warfarin and frankly, I think some of that is antiquated thinking, or limited experience with managing warfarin and INR in the non-elderly.
First, they need to make sure you dont have another event.
Second, the clots need time to break up and be absorbed.
Those are pretty important, and it's very new for you. I have been just under 3 months.....I am settling down a bit and being careful, but yo need to find your peace and comfort point on this, in conjunction with your dr.