Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
Hello all,
So this is mostly more of a rant then a discussion!
So as an update, I have been off coumadin almost 2 months...
My paranoia comes and goes... i had some major panic attacks when I first went off. I went to the er two time with what I swore was a pe but turned out to be panic attacks.
Now im just complaining about a general feeling like poop feeling.
I got my period finally after 2 months last week, and it was a mean one lotsa cramps and headaches went with it! ( I have irregular periods which is why i usta take the bc ..that caused my pe, so now i gotta rough it without bc)
I figured once my period left i would be feeling all better!!!
Then I woke up on friday with one of those stye things in the corner of my eye which put a damper on my whole weekend!!!!!!
Then I woke up monday feeling like I was getting a cold my throat hurt and my nose and ears are all stuffy... im a bit better today but not totally!
Im taking some ecnasia ( I dont think i spelled that right but i sounded it out) which is gross, but hoping to boost my immune system!
This morning I stepped on a peice of glass from a wine bottle that had broken like 2 months ago... we have cleaned the floor a million times but little tiny peices keep poping up...
I joined weight watchers yesterday, which I would be more exited about if I didnt feel like crap. I really want to dedicate a lot to loosing weight however, it just seems like one thing after another .... I feel like im waiting for me to feel "perfect" I think my expectations of health are really unrealistic, I think Im super hyper aware of when im not feeling 100% and instead of just going on with life like i may have before my pe, I allow something as simple as a stuffy head stop me in my tracks...
I wish i could be tougher again, and not so intently focused on my health when it comes to simple things such as allergies or a cold....
I really need some encouragement from my PE, DVT friends. My gf and therapist and family tell me to just "Push through not feeling well"
or to stop obsessing about not feeling well bc it makes it worse ( which i do agree with) But not its come to a point where i want to truly dedicate myself to loosing weight starting off low with exercise, with my treadmill and wii fit. I am starting to eat right and acccording to the weight watchers plan as of today.
PLEASE TELL ME its worth it to push through feeling bad and that someday Im going to be healthy and energetic again! I have many days where i feel as though my pe never happened and im thankful and then i have some days where i feel those lovely reminder twinges in my chest, thankfully i usually pop a couple advil and they usually go away....
I just want to know if someday I will be healthy and happy again. My dr says that I dont realize how much of me feeling down and sluggish has to do with my weight and if I could just devote myself to loosing weight that I would notice a huge difference. Im sure my weight has something to do with all of this bc over the last 11 months since my pe i have gained a huge amount of weight about 40lbs... so now my road to being thin and healthy have almost doubled ugh. anyways...
Im really reflecting on life I just passed my 11 month point on MAY 10th wow I cannot believe im almost to a year....
Anyways... sorry this is long but you all know to expect a novel when dealing with me..
LOVE YOU GUYS!
So this is mostly more of a rant then a discussion!
So as an update, I have been off coumadin almost 2 months...
My paranoia comes and goes... i had some major panic attacks when I first went off. I went to the er two time with what I swore was a pe but turned out to be panic attacks.
Now im just complaining about a general feeling like poop feeling.
I got my period finally after 2 months last week, and it was a mean one lotsa cramps and headaches went with it! ( I have irregular periods which is why i usta take the bc ..that caused my pe, so now i gotta rough it without bc)
I figured once my period left i would be feeling all better!!!
Then I woke up on friday with one of those stye things in the corner of my eye which put a damper on my whole weekend!!!!!!
Then I woke up monday feeling like I was getting a cold my throat hurt and my nose and ears are all stuffy... im a bit better today but not totally!
Im taking some ecnasia ( I dont think i spelled that right but i sounded it out) which is gross, but hoping to boost my immune system!
This morning I stepped on a peice of glass from a wine bottle that had broken like 2 months ago... we have cleaned the floor a million times but little tiny peices keep poping up...
I joined weight watchers yesterday, which I would be more exited about if I didnt feel like crap. I really want to dedicate a lot to loosing weight however, it just seems like one thing after another .... I feel like im waiting for me to feel "perfect" I think my expectations of health are really unrealistic, I think Im super hyper aware of when im not feeling 100% and instead of just going on with life like i may have before my pe, I allow something as simple as a stuffy head stop me in my tracks...
I wish i could be tougher again, and not so intently focused on my health when it comes to simple things such as allergies or a cold....
I really need some encouragement from my PE, DVT friends. My gf and therapist and family tell me to just "Push through not feeling well"
or to stop obsessing about not feeling well bc it makes it worse ( which i do agree with) But not its come to a point where i want to truly dedicate myself to loosing weight starting off low with exercise, with my treadmill and wii fit. I am starting to eat right and acccording to the weight watchers plan as of today.
PLEASE TELL ME its worth it to push through feeling bad and that someday Im going to be healthy and energetic again! I have many days where i feel as though my pe never happened and im thankful and then i have some days where i feel those lovely reminder twinges in my chest, thankfully i usually pop a couple advil and they usually go away....
I just want to know if someday I will be healthy and happy again. My dr says that I dont realize how much of me feeling down and sluggish has to do with my weight and if I could just devote myself to loosing weight that I would notice a huge difference. Im sure my weight has something to do with all of this bc over the last 11 months since my pe i have gained a huge amount of weight about 40lbs... so now my road to being thin and healthy have almost doubled ugh. anyways...
Im really reflecting on life I just passed my 11 month point on MAY 10th wow I cannot believe im almost to a year....
Anyways... sorry this is long but you all know to expect a novel when dealing with me..
LOVE YOU GUYS!
-
My 6mo twin DD's are EBF and just started rice cereal on the first. Everything has been going fine except this morning one of them had a diaper rash (lots of redness around her anus). I read this as one of the signs of an allergy. BUT I did just buy a different brand diaper yesterday (which they have used randomly before w/no issues). Do you think its the cereal or the diaper? Im ready to start...
Hugs and blessings,
Tabby
Cheer up and enjoy this day...
Happy B-DAY Ash!!
:p
Shhhhhhhhhhhh... :)
I missed your birthday!
a great big cupcake with extra icing and sprinkes!
(and it is magic so it only has 1 WW point)
I realize I am playing along...but I hope this cheers you up a bit...
feeling beter today, sometimes i think my low mood makes me feel sick too isnt that weird...
Well taking it one day at a time, im hoping loosing weight will give me some energy and bounce back!!!! ( less jiggle tho ) lol eww i know sowwie thats gross!
I know I'm still very nervous about coming off the coumedin, but I'm waiting until July or August. Don't want the stress in June..... you have already come off and you're doing great. Maybe your doc will let you get a d-dimer test like Nancy to see if your body is clotting, but I personally think you're doing wonderful my friend!! :) AlexandraK
Well, I have to say, IT REALLY DOES GET BETTER. I never thought I would say that. When I came off Warfarin, I joined a Slimming class, but my heart was not in it so I gave up. I am loads overweight, but I felt I needed to get over my PE trauma first before embarking on one of my obsessive weight loss programs - I was tired basically. I feel ready now to start getting healthy and I am doing it in small steps.
I still get the twinges and panic attacks now and then, but I get through them and they become much less and further between. I read on a post that we will never quite be the same again and that is true - we are now EVEN better - yes, we did not want this to happen to us, but it has and now we are so much better informed at how important life is and we should use this experience to make our lives happy.
We know the medical system inside out and we know how totake care of ourselves. If we have any illnesses in future, we say we had a PE in the past and we get seen sooner. If we get pregnant, then we have extra care from specialists.
Remember everyone can have a clot - a DVT, a PE - that is every person can have one - some do, some dont, some are more likely, some are not, but we have no control over that - we can control losing weight, taking supplements to naturally thin our blood and looking after oursleves by regular check ups with our DRs. We have had a clot and SURVIVED - therefore, we SURVIVE clots - our bodies should be congratulated for that at least. Thatis how I like to think about it - we are intuned to our bodies warning systems and now we are MEGA in tune cos we had one before so we can always be vigilant in the future.
Also the amount of research is amazing on clots and new reserach is happening all the time and so are new medicines. I know warfarin gets a hard rap, and i am not its biggest fan, but at least there is a medicine out there that can protect us from clots.
Anyway, I have ranted, but I overall wanted to say that Ashley, it does get better, I promise. Email me anytime if you need to chat and you dont see me on here, or facebook me.
LOve Dawn x x x