Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
@ elsners
Could you elaborate on this post you made on another thread? I'm detail oriented :) so as much information as possible?
http://www.dailystrength.org/c/Pulmonary_Embolism/forum/14932422-heart-abnormality-scared-and-need
Reply #19 - 09/27/12 12:11am
You said:
"When you say sleep study I get the idea it's going to a med facility and spending the night ,in a bed sleeping being videoed monitored and recorded. This is expensive and not as good as home monitoring.
One goes to the facility and a monitor in put on, in my case it was a belt with a battery, maybe electrode patches, a microphone and an oximeter and a nose thing to gauge breathing. Bring it back the next day and their information is read by a doctor. I even see them now where you just wear a head band device.
My test showed 27 time per hour I choked on my tongue and my o2 went to 90%. When you choke you body goes into emergency mode to wake you, up flooding you blood with adrenaline and other hormones. You don't get the deep sleep and rem sleep necessary for reparative needs. I wouldn't be surprised that clotting is affected by these cycles. By the way , The hormones stay elevated all day and probably increase weight gain.
My friend just got tested his choking was 70 times per hour and his o2 was down to 70%. It's hard to believe but that's what he said. He feels a whole lot better in many ways."
I'm interested in getting that type of monitor. You can post it publicly or send me a PM.
Thank you.
Could you elaborate on this post you made on another thread? I'm detail oriented :) so as much information as possible?
http://www.dailystrength.org/c/Pulmonary_Embolism/forum/14932422-heart-abnormality-scared-and-need
Reply #19 - 09/27/12 12:11am
You said:
"When you say sleep study I get the idea it's going to a med facility and spending the night ,in a bed sleeping being videoed monitored and recorded. This is expensive and not as good as home monitoring.
One goes to the facility and a monitor in put on, in my case it was a belt with a battery, maybe electrode patches, a microphone and an oximeter and a nose thing to gauge breathing. Bring it back the next day and their information is read by a doctor. I even see them now where you just wear a head band device.
My test showed 27 time per hour I choked on my tongue and my o2 went to 90%. When you choke you body goes into emergency mode to wake you, up flooding you blood with adrenaline and other hormones. You don't get the deep sleep and rem sleep necessary for reparative needs. I wouldn't be surprised that clotting is affected by these cycles. By the way , The hormones stay elevated all day and probably increase weight gain.
My friend just got tested his choking was 70 times per hour and his o2 was down to 70%. It's hard to believe but that's what he said. He feels a whole lot better in many ways."
I'm interested in getting that type of monitor. You can post it publicly or send me a PM.
Thank you.
That's cute! (grin) Not.
While in a wheelchair over a decade ago, barely able to walk to the bathroom, my then husband took me to see one of over 15 doctors trying to find out what had happened to me (nothing connected with PE's, btw. I felt I knew but couldn't find a doctor to test or even consider it.)
He was a physiatrist. (Physiatrists, or rehabilitation physicians, are nerve, muscle, and bone experts who treat injuries or illnesses that affect how you move)
I got the pins stuck on the shin and the tuning fork exam. Must have taken him about 5 minutes to give me his 'diagnosis'.
"You need to do aerobic exercises" !!!
I was too sick to even respond and I was wheeled out of his office almost crying.
There are many labels that doctors can hang on patients that negate the need for them to think.
One of them is Somatoform Disorder.
Another is Munchausen's.
And if you have a child that you feel is very sick and see several different doctor's the even more insidious dx is Munchausen's by Proxy. I personally know of several people who have had their child taken away from them because the doctors couldn't take the time. (Again, not PE people.)
In a strange sense (and will people please NOT take this wrong) having a PE (IF you survive) is much easier because the evidence right there on your CT! You will get treated and usually correctly.
THEN----- try being a woman ah hem 'of a certain age' and see what your diagnoses will be. LOL
My mother has Hypochondriasis. She thinks she has every disease she reads about. She catches non contagious diseases from other peoples diseases ect.. After I learned about OSA I saw it in her. She says, I just think she has it because I have it. But you can see he chocking repeatedly when she nods off . She listens to everyone but her 2 sons, so when I suggest she get tested she rebels. It took me years and calls to her doctor to try to get her tested, to no avail. Finally she has an aid now as she is 95 , and her aid told her it is is scary to watch her choking so much. She listed to her aid and got the test. Her doctor sent her to an in Hospital study where she never sleep at all . So she says. She may have nodded off I don't know. The test was a total waste of time and money. She tells me the doctor says she's an anomaly. So she isn't treated for the disorder. I sent e mails after e mails with links to in home testing but she didn't follow my suggestion. I cant help but wonder what she would be like now , if she just did the easy home test 5 years ago. She is into dementia now although pretty sharp for a 95 year old. So this is why I'm so adamant Pro about home testing for OSA. If one doesn't like the home test one could follow up with the expensive In Hospital one.
.
http://www.sleepcare.com/index.php/a-look-at-the-top-sleep-apps-and-gadgets/
the model I use looks like this one
http://1800cpap.com/respironics-m-series-remstar-auto-with-humidifier-c-flex-1.aspx?gclid=CJ_f05vX47QCFal_QgodSGIARg
I see them like this on Craigs list . Some times patients are given these and then sell them for drug money -be advised