Oops didn't mean to add this three times. Lungs ache, assumed everyone was a mind reader.....

Funny, mine is worse in the morning but gets better throughout the day. I've been REALLY tense when I sleep, so I thought that might be the problem for me. I hear you with the tiredness. It gets old fast and I'm really sick of feeling that way. :(

I am a year and a half in and I still feel the aches and tiredness. And yes it does wear on you-I understand completely what you mean!

Thanks, when u mention it to the dr they look at you like u r talking complete rubbish. They seem to think clots have gone, back to normal. I don't wish this on anyone but it's a help knowing its not just me.

Yes the dr.'s think there aren't real side effects to the meds or the illness. I have got the looks of doubt from them too!

Drs do that because you are considered cured from the critical issue.

I had my PE almost 5 years ago. I still once in a while get a sharp pain in my back when I take a deep breath. That happened this weekend actually. And, my lungs bother me when it's super cold out or really humid. But it's manageable and not something I dwell on and it doesn't prevent me from doing stuff.

I think people become extremely hyper aware of pain and shortness of breath and fatigue after a PE, so I think some of this is a psychological thing because we're on high alert after a PE and therefore feel every ache and pain that we'd otherwise not even notice. I personally think we do not do enough to stay active during the recovery process which leads to us actually getting tired and not having stamina. There's a lot of contributing factors to fatigue that may or may not be solely from the PE.

If you have a complete clean bill of health, and have no residual heart or lung damage from your PE, then I do think we sometimes have to look at other reasons for the discomfort and fatigue, ie stress, depression, anxiety, other health issues, etc. I know after my PE, I think I was a little depressed, in hind sight. That did absolutely nothing for my physical health that's for sure.

I also think some people may have other health issues too that could be part of the problem. For me, I have an autoimmune disease that kicks my butt all the time. And I started going through perimenopause shortly after my PE which I think just takes a toll on my overall energy and well being. So I think sometimes we need to look broader for reasons why we continue to feel like crap so long after a PE. I'm not saying you can't experience PE related stuff years out because I know people here who have medical issues directly related to their PEs. I think this is especially true for people who had lung infractions or heart damage from their PEs. But I also know that sometimes what we experience may or may not be from the PE, so I think sometimes we have to ask ourselves, what's really going on.

Just some food for thought.

I am now about...9, turning 10 months out too and get exactly the same...People have noticed the weight I've lost and say, I bet you feel great! Losing so much must really have helped! (I've lost 35kg / 77lbs since November 2011). I have to remind them every time what actually happened to me, if it weren't for having the PE's I would probably feel totally amazing!

But yeah, I get similar lung aches, usually the evening after my body starts to wind down and relaxes a little. I have noticed I get the "cold lungs" feeling in cold weather a bit more, but it doesn't feel any more difficult to breathe, but with humidity it definitely feels much tougher on me.

I'm at the point now, which I've said in older posts, where I've just had it with being/feeling weak all the time and I'm now putting more effort in to try and get back to where I was before all this stuff happened. I feel like I get left behind, even if my fiancee says I'm not and of course she is right, but it feels that way.

If you don't moan about it at least a little, it'll eat away at you, let it out, even if it is "on us" =).

your not moaning so dont ever think that. thats how the doctors make u feel not other people who are going threw the same as you. 2 years im approaching now since mine and yea i feel so tired some days and of course as u said it gets wearing especially with the aches and pains also i get very frustrated with doctors its like im telling them! but my bloods are correct my PE has healed how can any of this be down to the PE AAAARRRGGGGHHHHH i wish they would come onto websites like this and see actually wot PE does after the incident , and please dont take this the wrong way because i wouldnt wish this on anyone but im so glad its not only me like this because if i was then i would of gone stark raving mad with the doctors long ago !

Thanks guys, seems like the best option is 'just get on with it' which I do most of the time but I have have the odd down day once in a while and it's usually here I come to vent my frustration. Lol