Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
Hi all,
I am having a really hard time; the last few days, my left calf area where I have the DVT has been causing me sooo much pain. I recently had my vc filter taken out and had to be on Lovenox shots, now my INR levels are still not theraputic...more shots and more coumadin...and I feel soo sickly and tired...
Could this be right? I am sooo tired and frustrated, I hate this soo much right now. I want to be pain free and have my life back....I was diagnosed on 6/17....with PE/DVT...when will I feel normal again? I go to bed crying every nite for the last week because I can't handle this...it;'s too much...my leg hurts, my arms and tummy have tons of bruises...I am losing weight like crazy....lost 12 pounds in the last month...what is wrong with me?
I feel really really sad about this....I am pretty much committed to being home bound...I cant walk more than 10 minutes cause I get tired plus my calf still hurts....now that my INR is still too low...1.5 I have to have blood tests every other day...so I can't have any vacation....I just need to know that I will get better.....I am going crazy!!
I am having a really hard time; the last few days, my left calf area where I have the DVT has been causing me sooo much pain. I recently had my vc filter taken out and had to be on Lovenox shots, now my INR levels are still not theraputic...more shots and more coumadin...and I feel soo sickly and tired...
Could this be right? I am sooo tired and frustrated, I hate this soo much right now. I want to be pain free and have my life back....I was diagnosed on 6/17....with PE/DVT...when will I feel normal again? I go to bed crying every nite for the last week because I can't handle this...it;'s too much...my leg hurts, my arms and tummy have tons of bruises...I am losing weight like crazy....lost 12 pounds in the last month...what is wrong with me?
I feel really really sad about this....I am pretty much committed to being home bound...I cant walk more than 10 minutes cause I get tired plus my calf still hurts....now that my INR is still too low...1.5 I have to have blood tests every other day...so I can't have any vacation....I just need to know that I will get better.....I am going crazy!!
What you are describing sounds like me some years ago (although from a different cause). I could barely get out of the house or down the street. I too thought I would be homebound. It took time, but I got better. However...
If you haven't already, it would be wise to tell your physicians what you've shared here. And if you don't get satisfying answers, keep asking. Even if it means changing doctors. It took me a while to find out what was wrong with me. A hematologist figured it out. But she was the fifth doctor I saw.
In the meantime, as you will see, there are many experienced and empthatic voices here who are not just great listeners, but people who can give you good, educated advice.
I'm sorry that this is happening to you. That this has happened to any of us. But, like us, you too will get your life back.
It took me 39 days to get my INR to a therapeuic level - and stop taking the clexane. I felt rubbsih all that time - everything you decsribe. I can really emapthise with you.I would cry at the drop of a hat - once because my daughter gave me tea and biscuits, and one of the biscuits was broken...
I stil can't go on hols either - still on weekly blood tests, plus need to get back to work, plus scared of flying. My poor teenaged daughter as been so brilliant, and needs a break after her a levels - but I can't even give her that.
I am still feeling so mch better now my INR is 2.5. I promise you willget there - it just feels like the 12th of the never at the moment, but there is light at the ed ofyour tunnel