Pulmonary Embolism Support Group

By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.

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Constant Leg pains

clarkjulieann
clarkjulieann
Ive been fighting leg pains for the last 3.5 months since my PE dx 4.5months ago. Upon initial dx, no DVT was found in either leg. I've recently in the last 2 wks went for a full body X-ray plus 2 u/s to check for baker cyst and had a Doppler study done again which shows no clots in either leg again. It is now being assumed my initial clot started in my pelvis sometime near the end of my pregnancy or during/after delivery. I'm so tired of these leg pains. Both legs get that creepycrawly feeling up and down it multiple times a day, will go numb then accompanied with the pins and needles feeling, at times it hurts to walk or to weightbare on either leg and my ankles and calves are constantly sore and achy. The last 4 days the pain in my ankles keep getting worse feeling as though I've rolled them but I haven't. Drs don't know what's the cause and with recent u/s coming back "normal" they've pretty much closed my concerns and said to just take Tylenol in hopes it's all muscular.
Is anyone out there experiencing similar in going pains? Or have any insight to what could be going on?

Thanks in advance
cave76
cave76
I, of course, can't say what's causing your leg pains but there's a medical term (peripheral neuropathy) that you might be interested in reading about.

http://www.medicalnewstoday.com/articles/147963.php/

Many different 'traumas' can cause them. In my case they started years ago when I contracted Lyme disease. They persist to this day and have even gotten worse in the past year or so. (PE and damage to the glia cells?)

Diabetics seem to be prone to them. But so do many other diseases/conditions.

I hope that you can find some relief from the pains and maybe when you go off warfarin (or are you a lifer?) they will regress.
cave76
cave76
Forgot to ask----- do your legs twitch involuntarily? Mine have for years and doctors love to give the dx Restless Leg Syndrome. Many will rx a fairly heavy duty drug to combat it, like Klonopin.

I refuse to take K. but I do keep the twitches a little under control with regular magnesium and calcium capsules. Just a thought.
rmb
rmb
Yeah I'm not sure what would be causing that. Doesn't sound PE related particularly if they've scanned your legs for clots. But check your vitamin B and vitamin D levels if you've not done so, to make sure you don't have a deficiency and stay hydrated. Dehydration can cause leg pain, cramps , and that pins and needles feeling too. Calcium /. magnesium may help too,like Cave said.
deleted_user
deleted_user
My heels and ankles have been bothering me on the last couple months too. And like you describe, it feels like I rolled/sprained them but haven't. It really is very wierd. My doctor thinks it's more related to tension when I sleep than the actual clots, which we are assuming (and praying since I'm off warfarin) are gone. My clot was in my pelvis, and was only detected b/c I had pelvic surgery 3 weeks prior and my doc wanted a full abdominal CT to be sure I was healing correctly. The heel/ankle pain is worse in the mornings, but usually gets a little better after I walk around a bit. The pain hasn't changed since I stoppd warfarin 2 weeks ago, so unfortunately I can't blame that. I just hope it gets better. It's really annoying.
clarkjulieann
clarkjulieann
Thanks for all your replies.
No, my legs don't twitch. It's more of pressure/squeezing, numbness and a pinching feeling. I'll read up more on peripheral neuropathy thank you Cave :).
RMB - I've had every blood test possible. My glucose levels are normal, thyroid is in range, iron is looking good, b12 looks fine full CBC is a-ok I do have to keep up with hydration because currently breastfeeding so I'm drinking a minimum or 12 8oz glasses of water a day more on hot days.

Jenner here's hoping your pain starts to subside. It gives me a sense of relief that I'm not the only one having these odd pains though. Just wish a dr could confirm whats going on amd maybe helo ease the pain and uncomfortable feeling it brings.
Congrats on finishing treatment! I have about 6wks left then I'll see my hema to go off and finish my genetic testing. A part of me is so excited for end of September to come...another part of me is already shitting bricks (excuse my language). I don't like warfarin and what it's doing to my body but I fear coming off, something will happen.
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