As of now they are assuming my pe was caused by bc. all other testing came back negative. they said to stay off of it and i never plan to take it again. not sure what else is out there that is safe. maybe discuss it with your doctor?

Yup, I've been banned from taking any type of hormones (estrogen or progesterone) for life. But, I am 1) >40 and 2) have FVL, so I have two strikes against me. The third is the estrogen. Can't un-do the >40 or the FVL, so... only thing left to take away is the estrogen. Hopefully you'll have more options but definately talk to your doc. Several here seem to have had good luck with talking to their gyno/obgyn rather than just their GP.
Hope you find something that works!
KS

nope doctor said "dont ever take hormone birth control again" he thinks thats what caused mine.

Some Gynos will give the OK for you to take progesterone based birth control, since there's less risk with that vs estrogen, but it's going to depend on why you clotted too, I suspect.

I'd suggest making an appoint with a Gyno to discuss what options would be best for you. For years, I used to have all my female exams and BC prescribed by my regular GP, but since the PEs, I started seeing a Gyno, and worked with her to figure out what my options were, so I could make an informed choice.

My first DVT was blamed on BC. My second DVT showed up five weeks after I stared prosterone-only BC. The moral of the story is no BC for me!

I had good luck with an IUD. Very effective and pretty much no maintenance once it is placed. But yeah, talk to your OB/GYN. I love mine!

FYI... Not good news on the "new" birth control options.
http://www.cbsnews.com/8301-500368_162-20126032/study-newer-birth-control-pills-may-double-blood-clot-risk/
KS

My doctors suggested I stay off of birth control, too. And I decided that I will never take the pill again after all of this happened.

Apparently it is the estrogen and synthetic progesterone (progestin) that put you at a higher risk. I would check with your doctors to be certain, though. There is also something in Yaz and it's generics called " drosperinone" and the FDA is working on tests now, because of the high incidence of PE's in women who have taken this formulation of birth control formulation.

Be careful. I have had a lot of success with evening primrose oil, acupuncture, and yoga in regulating my period. I wish luck.

i had a hematologist appointment last week. he knows i have two sons and my daughter just turned 18 this month. i never used bc pills as my method and we had difficulty conceiving. so i got the talk from the hematologist that i need to have a serious talk with my daughter about never smoking and never using bc pills. positive factor 5 lieden. he pointed to my oxygen tank and said you just tell her that if she doesn't want to live like that she needs to listen. thankfully she is not active yet but only a matter of time and i am so freaked out about reliable methods for unreliable teens. we have always taught wait till marriage but that is not always what is gonna happen. i don't wanna be raising no grand babies. times and methods have changed so much and she is not open to hearing to much on the subject from mom. i just don't know how receptive she was to my input. how do you convince a teenager to go to a clinic to gather information i wish i didn't have to think about yet?

Not only can I never use bc, but the doctor also told me that I should advise my daughter NOT to take bc. Seems the blood clots can be hereditary. My mom had them, I had them....you see where I'm going. I actually switched to an IUD which worked for me.

Here is a link to several topics regarding BC from our ClotConnect website:

http://clotconnect.wordpress.com/category/special-situations/women-and-blood-clots/

Clot Connect is a program of the University of North Carolina's Blood Clot Outreach Program.

R/
Tom

i will never touch BC again after what happened to me! i dont reccommend to anyone after the shit i went through. If you dont wanna get pregnant, use condoms or dont have sex! I'd rather have a child then a blood clot!

Seriously those are the only two safe options?? Welcome to the 1800s. I hope you enjoy your stay while I throw myself off the nearest bridge.

I use birth control other than a condom- I use a non hormonal IUD. So there's no risk for blood clots, and it's very effective against preventing pregnancy. So, it's what I like to call a win/win.

There are other options. You are not resigned to a life of condoms or the convent. I'm just sayin'.