Pulmonary Embolism Support Group

By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.

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Dchild 02/16/2012

I find I have good days and bad days since the PE, but the bad days are really bad. It's not so much the physical. I feel like my physical recovery is going very well. I don't have pain, I have more energy. I can take deep breaths. I'm tired but it's manageable. The hard part is emotionally. I find I'm getting angry and flying off the handle so fast. Today I got into a fight with someone important in my life and I'm having trouble moving past it. I'm stuck in a rut of feeling angry and sorry for myself. If this has taught me anything it's my support system sucks. I saw a counsellor earlier this week and she was helpful but I think I need to see a counsellor every day just to get through. I'm thinking some of this is because of the anger of dealing with the PE, being scared etc... One thing is I really tried to hold everything together while I was in the hospital, but when I got out I fell apart. I'm having trouble coping.

deleted_user 02/16/2012

I'm sorry you're having a hard time. I can definately relate, although I find I still have many more bad days than good. I too am frustrated, angry and feel like I'm falling apart at least daily. I can also relate to the lousy support system. Their advice, go exercise and stop worrying. Well, I wish I could but I can't and exhausting myself is no help at all. I wish I had some advice but want you to know you're not alone!

deleted_user 02/16/2012

Im sorry your feeling so down in the dumps. Good for you for seeing a counselor, you've done a lot more than I have at this point so that is awesome. For the times you cant speak with them we are all here so feel free to let it out.

I am about 15 months out of DVT/PE and I still have my days (if you read my posts from recently you'd see, gosh), lately I have been on a complete and utter downer but never fear, there is an end to it. I found myself getting so angry like yourself, and I spoke to my doctor about it. His suggestion was to really confide in someone who understands just to get it out. Its not good to keep it all bottled up. I know how crazy it makes you feel, all the emotions. Hopefully you will be feeling better soon and you get some relief from it all. Take some time out just for you to relax and regain a little peace from all the stress. All the best xx

TossNTurn 02/16/2012

I was really on a major emotional roller coaster after my PEs. I handled my previous DVTs well, and was totally not prepared for the emotional wallop of the PEs. Took me months to feel like I had regained some equilibrium and I had to do both therapy and some anti-anxiety meds to do it.

Hang in there! I'm really glad you are seeing a counselor. See what she says about seeing her several times a week for a while. Sometimes you just gotta do the intensive therapy to get through this stuff.

But it does get better. And we're all pulling for you...

Dchild 02/16/2012

Thanks everybody. t really helps to have your support. I'm going to have a warm bath, read a trashy magazine, and get som sleep. Maybe I'll feel better tomorrow. I think I'm going to cut out some things in my life that are just giving me too much stress right now. I just don't need it.

deleted_user 02/20/2012

Glad to hear that physically you're doing much better. Now its time to believe in your emotional healing as well. Just remember, you're the captain of your ship. Choose the way you want to dance with life, despite your past pe difficulties. Life is not a dress rehearsal. We get one shot at it. Make it your best.

lifeat27 02/20/2012

Hi Dchild! I can definitely relate to the emotional roller coaster. Some days I almost forget I ever had a PE, even with the fatigue, but other days I too feel upset and angry at the world.

Of course, I suffered from depression before the PE so I am having a hard time differentiating between whether it is my depression or the PE that puts me in those ruts. On those days I force myself to either clean the house or go for a walk (anything that will distract you) and go to bed early (to escape the sadness). The extra sleep helps too!

I hope you are feeling better soon, and either way we will always be here to be your support system! :)

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