Psoriasis Support Group

Psoriasis is an immune-mediated disease which affects the skin and joints. When it affects the skin it commonly appears as red scaly elevated patches called plaques. Psoriasis plaques frequently occur on the elbows and knees, but can affect any area of skin including the scalp and genital area. Psoriasis can also cause inflammation of the joints. This is known as...

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Kristen04 07/04/2013

I haven't posted anything in awhile and actually haven't been on this site either because I thought I was okay and finally starting to accept myself and my psoriasis(on my hands and feet), but I was wrong. I went to the dermatologist yesterday and felt very embarrassed and depressed. Every time I go there I don't feel hopeful because they keep telling me it's chronic and "stubborn" and I hold back the tears. Will I ever be happy with the way I look? It's the fourth of July and I'm at home by myself while the rest of my family and friends are at a beach party. Why am I home? Because I'm too embarrassed and feel anxious around large crowds. I'm going on vacation with my entire family (19 of us) to Dominican Republic at the end of the month and I should be excited but I'm not. Only a select few family members know I have this condition and in a way I want to keep it that way but I also don't want to have to worry about hiding it the whole time. My doctor prescribed another lotion/medication to apply to my skin that will hopefully make it softer and help but I have no insurance so I don't know if my parents will be able to afford it. I just want to be happy and to have no worries about how I look. I want to be able to accept myself so others will accept me. I want to get married one day and have children(who I pray won't contract psoriasis from me). Is that too much to ask? I'm only 18 years old...this is ridiculous. I shouldn't have to deal with this at such a young age...nobody should have to deal with this. It's even more frustrating because most psoriasis is genetic but nobody else in my family has this! Why did I draw the short straw? It's just not fair. I don't know what to do anymore. Does anybody else feel this way? How do you cope with it?

GunaDieAloneInPain 07/05/2013

ive had sever P since im 20 and sever PA since 25. i alwayd get the worst of everything. some people get alittle P and i get 75% of my body covered. some people get mild PA and i get it sever in bacially every part of my body. and i always ask, y me?

i always thought one day of getting married and having kids but with having this i second guess it and not sure i want to with the chance of having my child go through what i have too. i couldnt watch my child go though all the pain and suffering i am, knowing i did it to them.

there is that chance they wont get it but idk if i would want to take that chance and have to live with that the rest of my life.

its not easy living with P and PA

deleted_user 07/05/2013

I feel you Guna, I was always afraid to have kids and pass it on. Hey, now on Methotrexate, I can't- my derm told me, that if contraception fails ( it never did before), to call her and arrange an abortion, as you can't get preggers on it and 6 months after stopping. Honestly? I feel relieved, one decision taken out of my hands.

challenger52 07/06/2013

Hello Kristen,,sorry to hear you are having such a difficult time with skin issues . I have Psoriasis as well so I understand some of what you are going through.At the time mine is under control and here is what I find helped.
1) Vitamine D
2)Vitamine B12
3)Eucerin
4)Drink lots of water ( 8 glasses ) dialy
5)Reduce stress ,,,get active ,,,walk ,swim , bike ,,,find something you like to do and do it .
6)Smile often ,,find a reason

I really hope you find something that helps.As far as the vacation ,,I think it may be a great aid in helping you heal ,,the salt water can do wonders for skin,,,,keep your chin up ,,nothing is impossible.

deleted_user 07/20/2013

I totally understand you. I've had psoriasis since my I'm 19. I'm 27 right now. And It just started on my scalp, now I have it on my entire body. Yeah, it sucks. And just like you I feel very uncomfortable in doing things such as going to the beach or pools, so I don't go.

I always wanted to get marry and have children, but I think that won't be possible anymore, I don't want to make anybody suffer this thing with me. I still think that someday there will be a cure tho. But by now I am trying to find anything to make me feel better and to gain some relief.

So far, the only thing that helped me was triamcinolone, but I can't get it here in the US and I used to get it in Dominican Republic, which by the way is where I am from, but they don't produce it anymore (yep, that's how lucky I am), so I am trying anything else.

Anyway, the only thing we have left is being strong and keep going. As long as we are breathing there is still hope.

Cheers...

deleted_user 07/26/2013

Have you tried garlic supplements?

deleted_user 07/26/2013

Stay away from dermatologist! I have tried everything and what happens your liver can't keep up with all the toxins so it comes out on your skin. If I take even an asprin or tylenol it bothers my psoriasis.
Drinking alcohol or eating fast food, anything bad for you makes psoriasis flare up and get worse. It is hard to be healthy easier and cheaper to eat bad but if you want it to go away Be Healthy and eat lots of fruits and vegetables. The garlic supplements 1000 mg. odorless softgels and don't put steriod creams or take any other prescriptions. Let me know how they work you will see a difference soon!

deleted_user 09/24/2013

i have had psoriasis for about 12 years, and tried some many creams and lotions, and the only one that works for me is DOVOBET. I have heard of this new natural pill called TINEFCON.

Brave 10/12/2013

Kristen!

As of right now, I am feeling the same as you ! I want to date, but
I'm too embarrassed with my Plaque Psoriasis ! I have climbed many
hurdles in my life, however when the body has the control it's like
feeling hopeless in anything I try to help my condition !

Remember, you're not alone !

BRAVE, (Kim)

abby80 10/22/2013

Victors, you can indeed get Triamcinolone in the US..just not over the counter. My boyfriend was just diagnosed with psoriasis and they gave him Triamcinolone ,1% cream. I myself have been prescribed both the cream and ointment for other issues. Ask your doctor because it is available!

abby80 10/22/2013

that was supposed to be .1% cream

deleted_user 10/26/2013

I've had p since I was 9 years old and I'm the only one of 4 kids that has it. I firmly believe that the stress I had to deal with in childhood was what brought it on and I got the worst of it being the oldest, which is why I am probably the only one with it. It was bad during puberty, but got a lot better in my 20's and stayed that way until I started going through menopause. Now it's worse than ever. I have it in my toenails and fingernails, scalp, lower legs, butt, back and arms. I have an appointment with a dermatologist and have decided to try Humira or Enbrel. I just can't deal with this anymore. It truly is a nightmare. I feel for anyone with this horrible disease.

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