Pseudotumor Cerebri Support Group

Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...

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went to the eye dr

notsurewhat2puthere
notsurewhat2puthere
ok went to the eye dr today and they told me that all my tests of my spinal fluid came back normal. She said that my pressure was high. She then told me that they wanted me to go get the mri with contrast because they couldnt get the contrast in me last time because the eye dr nurses stuck me 5 times to get 1 vile of blood and there was no where else to put the contrast. So they want to test to make sure I dont have thrombosis whatever and gave me diamox sequels 250mg twice daily. Well I went to sleep after the appt and the dr called and said not to take the medication and to call her back. Problem is that you cant get ahold of them and there closed now. Why would they not want me to take the medication? my optic nerve isnt as swollen as it was last time but its still swollen
ladyhorn1
ladyhorn1
Find out the unit of measure and get back to us! K?
notsurewhat2puthere
notsurewhat2puthere
ladyhorn I wont go back to the eye dr till sept 30th so I will find out then
deleted_user
deleted_user
Sorry you are having such a difficult time...the only advice I can offer is to request copies of all YOUR medical records and testing you have had done so you can take them with you to your next appointment with your NEW DOCTORS..I am not sure what area you live in maybe someone on here can recommend a Neuro to you and get your primary care physician to refer you. I would also call who ever did the PL and inquire what unit of measurement they used, you should not have to wait for your next appointment to get that information. Good luck and keep us posted. Paula
notsurewhat2puthere
notsurewhat2puthere
I only have free health care through the city hospital thats all I have I am pending on other insurance through the state
notsurewhat2puthere
notsurewhat2puthere
my opening pressure was @70 millemeters of water
mary1973
mary1973
I would go see a good doctor, go to the ER a differnet hospital and take those results with you, the state medicaide will pay for it once your approved, atleast they should. Also, hospitals have finacial aid to those that qualify, its a simple application usually through the billing department. Your health is more important than BILLS!
mary1973
mary1973
I found some good info on the CHairi malformation site about OP measurements as lp's are advised againts due to further herniation risks, anyways here ya go.

"Before any fluid is removed, the needle is used to measure the "opening pressure". Although many sources vary on what "normal" CSF pressure should be, most respectable sources seem to agree that normal CSF pressure ranges between 12mmHg and 15mmHg (or, 120mmH2O and 150mmH2O). "