Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
Topamax is evil. Some people are okay on it, but it can stuff your head with cotton and make you stare at the wall for hours at a time. It can make you so confused that not only can you not find your keys, you don't remember if you even have keys. It can make you depressed, make you drink water like a fish, and give you kidney stones or push you into metabolic acidosis. It can cause glaucoma. It can make your skin have festering blisters that peel off like burns and endanger your life. The good news is almost everybody loses weight on the stuff because your apetite will probably be completely gone. When I was on it I had to force myself to eat.
Diamox is also evil. We all know what it can do.
Evil + evil = diabolical
I don't mean to discourage you because you are probably one of the people who are okay on both of them. Right?
YES, call your doctor right away. Have him change your prescription. The drugs alone are enough to deal with without having an allergic reaction on top of it. Plus, if you don't remove the milk products and you have an allergic reaction, you won't know if the reaction is to the Topamax or the milk. The doctors probably wouldn't take the risk of keeping you on the Topamax. If you get a rash or any other reaction they'll pull you off the topamax for good. One more option gone. So get rid of the milk.
By the way, about the festering blisters and skin peeling off thing. It's called Stevens Johnson Syndrome and it is quite dangerous, sometimes fatal. It's early signs are flu-like (sore throat, fever, etc) or swollen glands, later skin rash, later skin peeling off and you land in the burn ward. Don't let it scare you because it is rare, but information is power - since this side effect is so serious you need to know what it looks like so you know if it hits. If you get any of the symptoms call your doctor IMMEDIATELY.
http://worldvillage.com/hectorhickma24-quincy-hardin
http://sjsupport.org/
http://www.drugs.com/pro/topamax.html
I'm crossing my fingers for you. The best thing of all is if you are fine on the two drugs, and it gets your pressure under control. You are a strong girl and I know there is the highest possible chance that this will be your outcome. :)
Randie