Pseudotumor Cerebri Support Group

Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...

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/ Pseudotumor Cerebri Support Group

sleep apnea

notsurewhat2puthere
notsurewhat2puthere
how many of you have been tested for sleep apnea before getting put on medicine? how many of you actually have sleep apnea? I got a fit bit and I am waking up like 10 times a night so now I am curious if I have sleep apnea. thanks!
SeaSprite
SeaSprite
My neurologist told me that sleep apnea can cause IIH or make it worse. It's supposed to be critical to have it under control.

It involves a simple sleep study. You guessed it. You just sleep. No pain, no trouble. They put a bunch of electrodes on your head, heart, and limbs, you have a nice warm cup of tea, and bonk. You are out for the night. If you are worried have your doctor prescribe a sleeping pill in advance. The sleep study doesn't just test for apnea, it also tests for a bunch of other sleep disorders, like restless leg syndrome.

I've had a sleep study and use a CPAP machine. It's made a world of difference.
notsurewhat2puthere
notsurewhat2puthere
I officially have real insurance as of saturday, I go on monday to a good dr and am going to ask about getting a sleep test. The free healthcare through the county doesnt cover sleep tests...but I think its worth finding out
HHugel
HHugel
I had a sleep study done and I don't have sleep apnea but my oxygen levels fall really low when I sleep. I sleep with an oxygen machine but that hasn't seemed to help. When I was in NICU following the surgery I would try to fall asleep but the alarm for my oxygen level kept going off if I hit below 90, which seemed like everytime I slept.

My husband has sleep apnea though and sleeps with a CPAP. You can get it to cover your nose and mouth or just your nose which he finds more comfortable. Apnea can cause a range of other things too including heart related so it is definitely worth looking in to.

Hope
deleted_user
deleted_user
I was diagnosed with sleep apnea 3 years before IH. It could not find a mask for my CPAP that would allow me to actually sleep so I do not use it.