Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
Hello all,
I am sitting here crying because I was reading about all the people who rec. VP shunts over LP shunts. I was not a candidate for a VP shunt. I had two of the top NS's in Cal look at my MRI and told me there was no way they would even try to get the shunt tubing inbetween my ventricles because they were unusually small. (These two NS were both experts on VP shunts).
Intellectually, I know that if people have a successful shunt story they will usually rec. the kind of shunt they got. I have been to other sites where each type of shunt was touted as the best. Of course there is research and what the NS thinks is the best.
But for some reason I can't seem to take it with a grain of salt today and it makes me so do feel so down, esp thinking about the future, or that I am a failure. I don't know if I can come to this site any more. Sorry for the pity party. If you've had a successful LP shunt I would love to hear from you.
Thank you and Blessings, Jazzy
I am sitting here crying because I was reading about all the people who rec. VP shunts over LP shunts. I was not a candidate for a VP shunt. I had two of the top NS's in Cal look at my MRI and told me there was no way they would even try to get the shunt tubing inbetween my ventricles because they were unusually small. (These two NS were both experts on VP shunts).
Intellectually, I know that if people have a successful shunt story they will usually rec. the kind of shunt they got. I have been to other sites where each type of shunt was touted as the best. Of course there is research and what the NS thinks is the best.
But for some reason I can't seem to take it with a grain of salt today and it makes me so do feel so down, esp thinking about the future, or that I am a failure. I don't know if I can come to this site any more. Sorry for the pity party. If you've had a successful LP shunt I would love to hear from you.
Thank you and Blessings, Jazzy
She needed a shunt revision 2 years ago, because the shunt failed, which they suspected was because of her growing 6 inches taller from initial shunt placement. It took a few weeks for her body to adjust to the shunt both times (definitely tried too soon to be upright for too long and that set her back, you HAVE to take it slow)
The only reminders of the shunt are the scars, and what she calls "shunt pain" when the shunt tubing floats around and causes temporary discomfort (minor, in the big scheme of things). From the initial onset of IH, before being accurately diagnosed and treated/shunted, intracranial pressure on her optic nerve caused vision damage to one eye, a "scotoma" which is a blurry spot in the center of her vision, but she has good vision around it and tests at 20/20 (with the doc allowing her LOTS of time to figure out the letters) but before the shunt she could only see the big "E" on the eye chart with that eye and really blurry vision out of the other.
I pray for good results for you, too, and my daugher would want me to add that she truly believes prayers and her own strong faith helped her through all of this. God bless you....M's mom
My shunt was tied off but I'm still having over shunting symptoms so I'm waiting for a shunt test to see if there is a small slow leak in the shunt. Your daughter's story gave me much strength and hope. I think of her story when I am feeling hopeless. It really helped me hearing about her success, though I'm sorry she had to deal with all of this stuff in the first place. Please thank her for me.
Many Blessings and again, thank you. Jazzy
God bless you!
~~ M's mom