Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
I'm scheduled to have an optic nerve sheath fenestration on my left eye next week. I have a great ophthalmologist, and he is going through the side of my eye. He explained it an outpatient procedure, an eye patch for a day, a little discomfort like sand in my eye for 2-3 days, antibiotic ointment twice a day for a week, probably red and swollen for about a week, and I'd be in my glasses with no bending, lifting or stooping (anything that elevates blood pressure) for about 2 weeks.
My family is coming to take shifts with my husband, as I have a two year old. That way I can recover with no bending, lifting, or stooping.
I'd like to know, what other's have experienced when it comes to recovering from this procedure? Pain? Red eye? In glasses? Return to normal activities? ... etc.
Please be honest, even if it's bad, as my family is preparing to stay for the long haul. Thanks.
My family is coming to take shifts with my husband, as I have a two year old. That way I can recover with no bending, lifting, or stooping.
I'd like to know, what other's have experienced when it comes to recovering from this procedure? Pain? Red eye? In glasses? Return to normal activities? ... etc.
Please be honest, even if it's bad, as my family is preparing to stay for the long haul. Thanks.
Keep us updated on how your vision improves, changes etc. I have to go by what you guys say mostly to be able to assess what's going on with my daughter.
Question for you: Does the inside of your eye (corner) seem lumpy and thick from the clear covering bulking up? I know they cut the clear cover from your eyes and then detach the muscle, etc.etc. but when they close you backup, I notice they stitched that clear covering back on her eyes and it seems to have let loose or is bunched up in the corner of her eye? Anyway, I just hope it smoothes out...looks uncomfortable and lumpy.
Dardue - My eye is a little "lumpy" over there too, but it's also still very pink. I have antibiotic ointment to put in there and that goops up as well. I will say that I didn't expect to be so tired from the surgery. I kept thinking it would be hard to sit still with the rest of my body working fine, but I slept a lot up until yesterday. I can focus know for hours at a time on TV or computer, but my eyes still get tired and I have to rest.
Also, I read somewhere that double-vision, which is very common after this surgery, is due to post-operative swelling. I started icing with a bag of frozen peas before my patch came off, just 10 minutes here and there, and I haven't had any double-vision. Also, it hurts less when I sleep with my head elevated. I have these large yoga wedges I slept on when pregnant that I'm using again. Those two things have really kept swelling down, and I didn't have any bruising around my eye.