Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
Yes I admit this is a weird subject but it pretty much covers some of the new joys I have. Along with the drummer in the back of my head whenever I stand up to brush my teeth or walk across the room, I have noticed my hands shake...a lot. Yesterday I had a follow up with my PCP dr and she noticed and made mention of it as well. I wear glasses and can not take them off or put them on with out shaking the entire time. Anyone else have suggestions how to make these stop? Also the weird eyeball thing - I really don't know how to describe it any better than that - I woke up yesterday morning and when I walked by the mirror to see how horrible my hair looked my left eye looked like the eyelid was up too far so there was more eye showing. I blinked a couple of times and it went away but then came back again when I showed my husband. Again, anyone have suggestions or had that happen? It's completely random times and I don't know when it's going to happen or not.
I appreciate you all SO much!!
Kristena
I appreciate you all SO much!!
Kristena
Anyway, here are some ideas to consider. Since your issues are worse when you stand up and walk, these actions raise your blood pressure a little bit and that's going to make the intercranial pressure response greater, too. The shaking hands can be the result of pressure on an intercranial nerve (as well as many other things). Here's a good resource with information that may provide some clues - http://www.merckmanuals.com/professional/neurologic_disorders/movement_and_cerebellar_disorders/tremor.html
Regarding the eyes, I can say that when my pressure was highest, my eyelids wouldn't close all the way over my eyeballs and I would swear that my eyeballs were pushing out from my socket. Sounds like this could be the case for you, too. This is when my PAPS were their worst, so you'll want to get a doc to check your nerves for pap severity to see if it's time for more medical action.
Hugs!
My suggestion is to raise these specific concerns with your doctor.
Thanks again,
Kristena