Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
My husband and I were talking, I had a head injury when I was 3 years old. Has anyone else had a serious head injury? I fell out of my crib and landed on a hardwood floor right on my head. The other thing that is not listed on the list of symptoms is OSA....I think I have it and need to have a sleep study but I was wondering who has it and who doesn't.
Thank you everyone :D
Thank you everyone :D
I cant get a sleep study yet, so i dont know for sure myself how bad i am - UK is rubbish for sleep studies. (and it seems like you need to go to Stanford even in USA to get a good one lol its an emerging area)
And actually yep i had a head injury as a young child, i stuck the back of my head by falling on the edge of a hardwood headboard. I had 7 stitches - dont remember a concussion (har har - no really dont think i had one), but i still have a ridge and scar in the back of my head to this day, so it was a bad knock. hmmmm would be very interesting to know if its a factor, but surely most children have head injuries at one point or another??? :)
As for head injury: Yes, several and a couple of concussions. All 20+ years before I started showing any demonstrable neuro symptoms, and the obligatory childhood wrack with stitches. The last big one (through the windscreen of a car) produced a hairline skull fracture that eventually became the site of my 1st CSF leak.
Sorry your crib jettisoned you.
I had a sleep study that appears to have been well done and my results were considered normal. I do have hypersomnolence according to the day time sleep study which simply means that I demonstrated clinically the fatigue that I've been complaining about, even after getting a good night's sleep.
Some doctors are aware of the connection between OSA and IIH, many are not. OSA seems to be quite underdiagnosed, even in the general population. Obesity is one of the factors thought to contribute to OSA and both are linked to IIH so you can see where it may be especially prevalent amongst IIHers.
When I have a cold my IIH gets worse, presumably because of the increased airway pressures during sleep. Makes a huge difference for me.
I have OSA but it is 100% controlled by a bipap machine. The machine itself confirms that it is controlled 100%. Now I sleep partially sitting up so the OSA has gotten even better. I think the machine's pressure is set too high now, which may actually be hurting rather than helping.