Pseudotumor Cerebri Support Group

Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...

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Previous post about a study done

armywife96
armywife96
I am trying to find a previous post that was put out I think in the fall of 2012 about how they are finding the studies for PTC and weight may have been skewed. I don't remember all the details but the gist of it was they had basically only accepted over weight females with PTC and therefore concluded it was weight that was the issue.
If anyone remembers when it was posted or remembers where the study came from I would be so very thankful!
I would love to find the article so I could go shove it down my doctors throat, very nicely of course! I'm so tired of the weight crap...especially when I am trying so hard to lose it!
Thanks in advance!

Danielle
deleted_user
deleted_user
HiThere,

There is a study can be found on the IHRF website : www.ihrfoundation.org but it is a little different than you described. It's been a long time since I read it so forgive me if I miss anything...
I think the study was done in Sweeden and they were trying to figure out whether obesity caused PTC or PTC became a factor in patients becoming Obese (PTC folks have a hard time with cardio due to pain, dizziness, vision problems) It's been a debate going on for years and years.
The study was inconclusive, but scientists thought it yielded enough info to continue with more research...not sure what happened after that.
Your average neuro will say Loose weight, spinal tap, and Diamox.
This does not work for everyone.
People of all shapes and sizes get PTC. If you choose to loose weight, try taking the PTC pressure off. Do it for you and you only. Do it for your own personal health reasons.
However, in my 17 years with PTC, I've known many people who have lost 50+ pounds and the PTC did not go away, and then other folks loose 5 lbs and they go into remission.
So, After I've talked way to much, regarding weight and PTC, the most current studies and research conclude that That the Jury is still out.
Best,
LuLu
mary1973
mary1973
Danielle, check out SOS broken search in discussion list, the search feature working correctly would have found it for you in no time, booohooo on broken search.
magnatomamma
magnatomamma
Unless there was another post and study, I think you might be referring to a study being done at Duke. The discussion on the Board here was one of disgust that they criteria for being part of the study was being a woman that was overweight. That is excluding those that don't fit the bill and kind of cedeing to the unproven idea that weight causes this.
Anyway, someone here participated in the study. It included a few factors and eating right and weight management was one of them.
Good luck
Amy