Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
Wish me luck. I am going to see the NO this am. I hope that this doctor is more up to date than the last one,, but the problem is he isn't well versed in this syndrome. If I don't get answers it will be off to OSU which is really far away. Asking for prayers and positive thoughts. Thank you :) I will update later today.
I see him again in 3 months and I will be getting a sleep study and neurological psychology study.
I also wanted to say that he is a believer in going up on the Diamox when needed....as high as 4000mg and is not tied to any LP numbers. He believes everyone's normal is different. KerenC I wish you lived here! Blessings to all and thank you again of thinking of me today. Aim
An onside neuro ready to work to cure the situation not just run the numbers. a reduction in pap proving the pressure is coming down with the meds! a win on the symptoms by eliminating the steroids. sleep study on the horizon to check out any other root causes. maybe diamox settling down too (although going up to 4 aint supposed to be fun but at least you got the option).
Its might be the start out of the waste land, still a roller-coaster though so be prepared for the bumps but, hope things are on a general upwards trend from here! :)
Keren xx