Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
My husband gave me his cold, again... On top of everything else. I know my pressure has been up, my head has been pounding. Well, with the cold my sinuses are stuffed and I even have stuff coming out of my eyes. I have had sinus issues before, but I've never had my eye drain like this? It's only one eye and I'm also having massive vision problems. I'm supposed to be having more testing done for my stomach/gallbladder but the vision issues cause me to question priority. The other concern though is if I go to the PCP for my sinus crap, is she just going to send me to the neurologist because of the pressure? Help...sorry if this doesn't make sense.
Kristena
Kristena
When I have a cold or allergies it makes my IH symptoms even worse. Do you think it could be a sinus infection? If so you need to see your PCP and get that taken care of. My PCP doesn't let me take antihistamines and decongestants because of icp pressure (he explained why, I forget), but if there's an infection he has always treated that right away.
Something else that helps my sinus symptoms a lot is a waterpic appliance with a nasal attachment. My sinus surgeon has asked me to use that every single day to help avoid infections. There are other brands, too. It's a little expensive but for people with chronic sinus problems it really works. Be sure to sterilize it with vinegar every week.
http://www.amazon.com/WaterPik-NA-2-Gentle-Sinus-Attachment/sim/B000077VXR/2
http://www.amazon.com/Waterpik-WP-100-Ultra-Water-Flosser/dp/B000GLRREU/ref=pd_sxp_grid_pt_0_2
http://www.amazon.com/SinuPulse-Elite-Advanced-Irrigation-System/dp/B001CWT4JI/ref=pd_sxp_grid_pt_0_1
In the meantime a neti pot is a good idea. Do you have one?
Yes, I agree as well. Treat the issue at hand.
Hope you feel better soon!
To answer a few questions, I don't think my sinuses are infected yet. But I think my pressure was up before and this has definitely aggravated everything. I was trying to hold out though because I thought other problems would be fixed quicker. I've been proven wrong though and now I have this.
I agree with them sinus infections make my pressure 10x worse!
the reason nasal congestion/sinus infections make your IIH worse is because this increases your SLEEP APNEA.
OSA increases ICP. for me with OSA as things got worse if I get any kind of virus in my throat it immediately goes to bronchitis; I think this is because in our sleep we suction acid from our stomachs not just up into our esophagi causing heartburn/GERD, into our sinuses causing chronic sinusitis, but into our lungs causing bronchitis and asthma. my asthma seems to be gone since jaw surgery to correct my OSA.
loveya, sometimes with sinus infections, the crap comes out your eyes. I hope you got that treated. the vision is probably worse b/c your ICP is higher because your OSA is worse with the congestion.
the lesson here is that, besides treating OSA definitively, we need to aggressively manage nasal congestion. use afrin if you have to, but do not sleep with a stuffy nose; it's lethal for us. even if you don't have OSA at baseline, you WILL with a stuffy nose. that's the reason that you can't sleep when you have a cold, because you are literally suffocating.