Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
Not much to say today ladies. Only there still was no heartbeat and my babys size actually got smaller.
However, I don't mean to be rude but I have heard these things time and time again in the last few days. I can't stand to hear them anymore. And they are as follows. Don't tell me its gods plan. Or that it wasn't the right time. Don't say at least my baby wasn't born and then dies b4 I had a chance to really love it.
I love my baby. From the moment I found out I was pregnant as u all know I tried and this was planned. I may not have ever heald my baby but it was my responsibility to protect it and give it everything it needed and I couldn't do that. My baby died before I could hold it. I didn't even get that much. I couldn't even give my baby a childhood. Many are treating this as a medical condition and not a death. I lost my child. I lost my baby, didnt get the flu.
I don't mean to sound bitter I really don't. But when I hear these things from people. It was meant to b my ass. It all makes me feel worse inside and hate myself. I'm sorry. I'm gonna get off here. Just wanted to let u all know
However, I don't mean to be rude but I have heard these things time and time again in the last few days. I can't stand to hear them anymore. And they are as follows. Don't tell me its gods plan. Or that it wasn't the right time. Don't say at least my baby wasn't born and then dies b4 I had a chance to really love it.
I love my baby. From the moment I found out I was pregnant as u all know I tried and this was planned. I may not have ever heald my baby but it was my responsibility to protect it and give it everything it needed and I couldn't do that. My baby died before I could hold it. I didn't even get that much. I couldn't even give my baby a childhood. Many are treating this as a medical condition and not a death. I lost my child. I lost my baby, didnt get the flu.
I don't mean to sound bitter I really don't. But when I hear these things from people. It was meant to b my ass. It all makes me feel worse inside and hate myself. I'm sorry. I'm gonna get off here. Just wanted to let u all know
Michele
Hugs,
Christa
I was one of these people, until tragedy hit my world. Now I to understand, how irritating and at times hurtful these remarks can be.
If you can, try, to see the care and love behind these remarks.
Its the best you can do with it.
As I said in my first post to you, you have lost something precious. A dr told my sister, that she had lost her future, which made a lot of sense to me.
Take your time , don't let any one hurry you or try to silence you in your grief. It is real and very painful.But you do have love and support from us,inadequate as it may seem.At least you have a safe place to express your pain here, among your IIH family Cath
People want to help but they can't put themselves in your shoes, but their intensions are good so they just do what they can. They have no idea they are making you feel worse, not better.
I had a miscarriage and it sent me into a very deep sadness for months. Grief doesn't travel in a straight line. Take the time you need and be easy on yourself.
Something that helped me finally feel better was a ceremony. We went to the park, talked about our hopes and what we had lost, and let a balloon go. It helped somehow.
Hugs, wishes that your heart heals a bit more every day.
hang in there girl, you are in my thoughts and prayers.
Mandy