sorry for missing a few words and for the terriable spelling..I wish we had spell check on this site.....
debi

Hard facts from the IH Research Foundation: http://www.ihrfoundation.org/intracranial/hypertension/info/C70

Just scroll down the page to the listing for memory difficulties. According to the IH Research Foundation, memory difficulties are a common symptom that many people with IH experience.

Yep, it is on the IHRF site in black and white, My memory is shot so bad my family ,they group me with my grandma who has alzheimers (sp?) and I am 35. Along with the constant pain and pressure , this was the other problem I was trying to get through to the doctors before I was actually listened to and dx.

Thank you,
I'm going to check it out now.

Hi Debi,

This topic is covered in the IHRF 2008 conference notes. At that time they were trying to figure out how to put a study together to correlate it to actual ICP. Not sure if they ever got it off the ground. Let us know what you find.

On another note, looks like you are in my backyard. We live part time in Long Beach:)

TJ

Just chiming in ! My long term memory is great but my short term memory ...what is that exactly ??

Thanks everyone,
Sometimes, it is nice to have validation. I get sooooo frustrated when, I share my concern about this with someone and they start giving you other reasons why it could happen. I than start to feel I have to defend myself, and I hate that. When pressure is high, that's is when I notice forgetting what I was going to next. Its not just a few times that day, its with every next task. ugh!'
Have a great weekend..
Debi
Hey TJ, What part LB do you live ?

Hi faith.Yes, the short term memory thing is a bit of an issue for me.
And, like you said yourself, it seems to be worse when my pressure is on the increase.

My family and friends have got used to it but my daughter, who has been away before I got sick, was home on 5 weeks holidays and thought I was just winding her up! She was getting so mad at me until her dad explained, that this is what it is.

On a plus side; I can watch a favorite programme on a Fri night and watch it again on Tues like it was the first time! Same with books.

We now have a monthly chart on the wall where we write down important things , like games, dinners, pick up child from school!
I could cook the same dinner 3 times in a week. Just cause the first time I thought of it was a good idea. My poor family.
I also, take the milk to bed with me on a regular basis. ( I am passing the fridge on the way to bed)

Its not all the time, just when the pressure is climbing, I think.
So, join the club! of short term...umm what that?! Cath.

Sorry I can't offer any hard facts, but like many other posters...I have a terrible time with short term memory...some days it takes me 5-6 trips from the house to the car, to the house. to the car....just to get all the things I need to take off for work...once to get the keys, then - oops I forgot my water cup...oops forgot the library books due today, what? you think I need the car keys (yes, I've already made one trip in to get them)...one more trip to make sure I turned off the curling iron....what? why would I forget my purse??? OMG I can't believe I forgot my sunglasses....

....one more oops - I'm a shocking 42 years old!!! My 67 year old mother can make it out the door faster than I can!!!! LOL

I have a hard time too. I have a degree as a vet tech but can't work in the field anymore. doctors rattle of a list of what they want you to do and before they are half way throught the list, I forget the first thing they wanted done. doesn't make them happy! I still work in a vet office but mostly as a recptionist-so I find myself getting up and getting halfway to the treatment room and then forgetting why I was going there! And it does seem to be worse with high pressure days, which is related to stress, which is also why I work reception. I still do some of the basic tech stuff but none the life threating stuff. I don't trust my brian to function properly!

I know that memory is affected by this, I speak from personal experiience, I forget everything...just basic daily tasks are a challenge, remembering what I'm doing at any given time. I have done quite a bit of research but can never remember what Iit said when I need to tell someone about it.

I've been carrying a micro digital recorder with me, seems to work as long as I remember where the recorder is..

Hello! I haven't noticed the memory loss as severe as others, but I do feel like my brain is cloudy. I have troubles remembering words and I forget to do things - at work (when I'm able to go) as well as at home. It's like as soon as I think of something, it disappears, or I can't think of it at all!
This is either because of IH (PTC) or the diamox.
My only proof is that this has NEVER happened to me before. And I am only 27. I have a bachelors in English, and I love words. My vocabulary seems to be dwindling these past few months though. I've always considered myself to be intelligent (not overly so), but I don't anymore. I would be terrified if I had to apply for a new job or do anything extra-professional-like.
I'm glad I don't live alone. I can only imagine the things I would forget to do.
Hope this helps and I didn't run too off topic!!!