Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
I know I have said this previously...but I wanted to thank you all for the wonderful words you have shared and the many, many facts about IIH and PTC that I never would have known without your words and help! I find myself sharing them with my mom, so that she is more informed, when I find something on here that you have shared that has caught my attention so much!
So, thank you!
Now, just one question. Does anyone know where I can get an awareness bracelet for PTC? I have the one from the IIH foundation, but it is a bit heavy...I would like to find one that is like the LiveStrong and Breast Cancer Awareness ones. If anyone has any idea, please, please share! And quite possibly one of those awareness magnets that you can put on your car, or a bumper sticker! I really want to spread awareness. The fact that one person could read these and then go look it up and spread awareness means a lot to me...that means we may get closer to getting help with a cure!
Thanks in advance. I am BIG on my awareness bracelets, bumper stickers and magnets!
Please share any information you have found or may know of.
Thank you again! You all mean the world to me...and I hope that is all right to say...I do not want to cross any lines and make anyone uncomfortable.
Okay, this post has become long enough. Thank you! (I said that so much!)
Heather :)
Hugs and love to al!
So, thank you!
Now, just one question. Does anyone know where I can get an awareness bracelet for PTC? I have the one from the IIH foundation, but it is a bit heavy...I would like to find one that is like the LiveStrong and Breast Cancer Awareness ones. If anyone has any idea, please, please share! And quite possibly one of those awareness magnets that you can put on your car, or a bumper sticker! I really want to spread awareness. The fact that one person could read these and then go look it up and spread awareness means a lot to me...that means we may get closer to getting help with a cure!
Thanks in advance. I am BIG on my awareness bracelets, bumper stickers and magnets!
Please share any information you have found or may know of.
Thank you again! You all mean the world to me...and I hope that is all right to say...I do not want to cross any lines and make anyone uncomfortable.
Okay, this post has become long enough. Thank you! (I said that so much!)
Heather :)
Hugs and love to al!
As far as your question goes, I'm not sure if there is a PTC foundation, I've only seen the one for IIH. I'm also a HUGE fan of bracelets and it would be awesome to get my hands on one. I think it's a great conversation starter and I would love to use it to spread awareness.
Big hugs back to ya! :D
http://www.personalizedcause.com/
http://www.hopeinbracelets.com/ih-awareness.html
I have been really tired since my second surgery 2 weeks ago so I have written in spurts, but I still try to read the posts everyday. My kids were gone the first week after my surgery and now they are back, and wow, does that make a difference in my tiredness factor! Bit I'm getting around a little bit more and hopefully will be ready to take them to school in 2 weeks!
Thanks for all the questions, answers, information and support from everyone :) it really has made me feel not so alone in this process.
xo Amy
I also have a tattoo on my ankle with the IH ribbon on it (blue/green). I've had it for about two years and love it. My only tattoo..!
:) Mandy
And I love your contributions to this group!