Good luck today, don't fret as I have convinced myself these awful symptoms are arising again in many of us due to the return of spring and fluctuating barometric pressures and all time pollen highs. I am tracking these pressures and how I feel, for the last few days my HAs are trying to creep in, seems to me Im starting to feel like a fish aagain. I've had a long reprieve during fall n winter, but with the pressures being 29.something and with higher humidity I'm feeling it?
Post when you get home to let us know what going on. Be calm, I'm hopeful its the weather for you too.

Mary

I missed the appointment this morning. I had it in my head that it was at 1030, looked at my calender and it was at 10 and had woken up at 940 almost...couldnt have made it! so They actually were able to reschedule me for the morning...

Mary - I've been feeling terrible too and have been watching the barometric pressures. Do you think it impacts us because our pressures are high but are on the border between feeling better (lower barometric pressure days) and being pushed over our limit (higher BP days)?

I've been getting steadily worse, too. My last LP results showed some proof of that. I have no idea why things are getting worse not better. Except maybe for being taken off Diamox. But my pre-diagnosis pressure was lower than the last one.

I don't know if it is the weather or what. I've lost 5% of my body weight, so weight gain can't be it. The trend pre-diagnosis was getting worse and worse, so maybe this is natural progression.

I'm as puzzled as you are.

Notsure, will you let us know how your appointment goes?

I got good news from the eye dr for once:)My optic nerve in my right eye is practically normal , my left eye is significantly better (the worse one of the two) my visual fields seemed fine... It seems like for the paps and eye damage the meds are working :)