Pseudotumor Cerebri Support Group

Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...

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CowgirlCasanova 08/11/2012

This is just a short post for me to send hugs to each and every one of you (BEFORE the storm shuts my power off again!!) Thank you for being so supportive, helpful and such a great team!

Love to you all!!

Cath278 08/11/2012

Hi cowgirl, I'm so glad to hear that you are enjoying this site.
I have not been around alot lately, but have been here forever!
When I joined we didn't even have 100 members.Now look at us!
I joined, invited by one of the few men we have here, TJ, a bit of a legend here,from a different site that I was not a bit happy with.

I wanted to join a group, where I could help, and not see any one suffer as I did, on my own for a long time.
I have been sick for 4 years now.Nothing seems to work for me, unfortunately, not meds, shunts, or witch doctors!

I have been there and done just about everything so if I can help you or any one else please let me know.
I have a V P shunt, that does nothing! had paps for years and have only recently got better, but coming back again.

I love the true spirt of helping each other here. It has always remained true to its cause.
If, you need me, just message. Cath

CowgirlCasanova 08/11/2012

Hi Cath --
I posted my story a little while back and it would be easier for you to read that, if you wouldn't mind? The title is "May be different from anyone else..."

That explains what I have been through!

Let me know what you would like to talk about from there!!

Heather

deleted_user 08/12/2012

I couldn't agree more. I love this group. I miss being here when I get too busy or sick to visit. This group gives me strength and inspiration. You people take away my fear, gives me a place to ask questions. With such a rare disease, I don't feel so alone and afraid. Other groups I looked at I refused to join because it was full of negativity and whining. Yes, we all have bad days and this is hard. But this group is so supportive and helpful to eachother. There's a lot of Christians here too, so I feel comfortable with that too because I belive faith is important dealing with all this junk. I always just can't believe the wonderful spirit of all of you now matter how much you all go through you are all so strong and still willing to help another. :)

CowgirlCasanova 08/12/2012

I agree, Valerie. I am not really a fan of groups that are nothing but whining. I prefer the ones who have some, even if just a little, of a good attitude.

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