Pseudotumor Cerebri Support Group

Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...

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randiew123 09/08/2010

This morning I got up and went to my front door to look and see if thought I needed to walk my dog out or put him on his cable. It had rained the night before. I turned around and went straight down to the floor. I could not believe it. I layed there for a minuite to see if all was OK. Then I thought Boy this carpet stinks. Yesterday I had a really bad head day. The back of my neck was killing me and when I woke up it was not much better. At work it is better maybe the fall shook things up.

Has this ever happened to any of ya'll?

I am getting to an age where falling could be really bad.

My Neuro has me on so much stuff. She is really good. I trust her I just hate it take 2 hours to get to her. I see her every 6 months.

Is that about the same as ya'll. OH can ya'll tell I just a country hick. LOL
I tell you I will never forget how I felt after the first LP. I feel asleep after it and when I woke up it all was gone the headaches, walking like I was drunk talking like I was drunk. The blured vision. Gone. It was wonderful. That was short lived. DARN IT. LPs are so scary. The first one did not have a good sticker the second one had a good sticker. It was like nothing had happened.

I'm at work better jump off and do some work. I was late getting here this morning. So hard to get up in the morning.

MrsLilly 09/08/2010

I run into the walls and sides of doors all the time, But i have not fallen. Did you black out ?? Take your time when getting up at first move slow until you know that the pressure is not going to rise all of sudden becasue you got up.

Be careful.

randiew123 09/08/2010

I did not black out. I turned around and my feet stopped and the rest of my body did not till it hit the ground.

deleted_user 09/08/2010

I have had a similar experience, except for me both of the time I feel, it was in the shower. I just got really really dizzy all of the sudden and lost my balance. The first time it happened was right after an LP and my pressure was too low and they had to do a blood patch. The second time was just a few months ago, and I hadn't had an LP recently and they didn't know why I got so dizzy and fell. They put me in the hospital and did a whole bunch of tests, but sent me home knowing nothing about what was causing the dizziness. I hope you don't fall again, and figure out what caused it. Good luck and Be careful

deleted_user 09/08/2010

Hi, I have not fallen, but I do get real dizzy and have to hold onto something until it stops, and I do run into walls and doors a lot. I am so sorry that you fell and I hope that your neuro can get your pressure under control for you. Take care and big hugs!

deleted_user 09/08/2010

I have fallen twice with no warning since I was DX with PTC. I am not sure what happened or if I blacked out, it was so sudden.

I am dizzy a lot of the time too, but when I fell I didn't feel dizzy...

meweird 09/08/2010

I once before i was DX heck it was before my vision even started to go all weird on me but maybe a month or two before that. I was in bed and my dogs where barking so i got up fast to see what they barking at but it was the oddest feeling i went to stand up you know but my feet where unstable and i feel stright on to my knees and took a moment before i could move. It didn't feel like a normal fall to me but like i couldn't stand type fall very differet.

As for being dizzy and running in to things i think thats par for the course for me

deleted_user 09/08/2010

I have not fallen yet, but I have been having problems today, felt like I was walking on a slant. Mt chiropractor nearly had heart failure lol she was following me out the door like she could actually catch me! ha ha.

deleted_user 09/08/2010

Oh yeah, I'm a mess. At work, my boss called my name down the hall and I turned around to look and went straight down. I loose my balance constantly. I have to climb ladders a lot in my job. Not fun. I'm in the hospital a lot too and I always get that nice arm band "FALL RISK" I have learned to take things much slower to prevent this. I can't stop the fact that I walk like a drunk, but I do manage not to fall on my butt...most of the time! lol

deleted_user 09/08/2010

Mandikasha -

So, what does your blood prssure run? I actually have had problems becoming dizzy, falling, passing out etc in the shower since I was like 16. (I was healthy and thin back then.) I never could get an answer for why this happened until last week! My blood pressure runs a little low naturally and my cardiologist explained to me last week that when you are in a warm shower, your blood vessels dialate which makes your blood pressure even lower. Which can cause the dizziness and other symptoms. She told me to drink two large glasses of water before taking a shower to see if it helped and so far it has.

I don't know if you have issues with blood pressure, but it still might be worth trying before you get in the shower.

VickyMcCown 09/08/2010

I haven't fallen but I have had whiteouts that make me feel like I am going to!! The last ones were after several days of bad headaches!!!! I don't have shunt yet but am in process of getting my first now!!! Know what u mean on falling!!! The older u get the harder u fall!!! Pls be careful!!!

randiew123 09/09/2010

My blood pressure is great (for now). Taking a shower does not bother me. I just wish I had a warning. I am afraid if I do this at work my boss will get rid of me. Not wanting any claims on workers comp. if I get hurt. I have been with him 16 years but that does not matter. He is just looking for a reason to rid of me because of my attitude. These really bad headachs have made me not to nice at times. If anyone know what I am talking about. I smile but it is hard to cover up.

deleted_user 09/09/2010

I fell in the shower this morning. Everything went white for a second (does that often), I waited for it to clear then lost my balance and out the door onto the floor. I feel dizzy often but this is the first time that I have fallen.

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