Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
Daily headaches means you have at least 1 headache every day. It doesn't matter if it lasts half an hour or all day, it's all classified the same.
Chronic headaches are 15+ headaches every month.
When I say HA, I mean HA as in pressure. My migraines are a different diagnosis and a different type of pain. I can distinguish between them easily, and know my migraine triggers.
Personally, I have had a daily headache that lasts all day, for the past 4 years. I haven't had a single day of no pain- I wake up and go to sleep with that awful pressure headache. Migraines come maybe 2x a month.
Hope you're doing well xxoo
My neuro kept trying to say I was having atypical migraines, but migraine meds didn't help and if it was a migraine it was definitely anything but typical, so atypical that it wasn't a migraine after all.
Not everyone here as 24/7 headaches though, like MC said. Some have them a couple of times a week. Although I don't have migraines I have heard it is very common for IH patients to get pressure headaches along with other types of headaches, like migraines.
May I ask how your headaches are changing?
Oh, I would like to add that if you ever get headaches or head pain that doesn't sound like any type of headache you know of, it may just be the IH doing something strange. For example I would get deep pressure pain that was in my right temple that would be 8/10 and last for 5 minutes and then go away or I would have one sided pressure headaches, but my neuro said that IH can do weird things. If this is the case it will probable go away after a couple of months.
Hope you feel better soon.
Hug.
Mallory
Pain meds take the edge off a little, but more importantly they put me to sleep. I get a few hours of relief. I'm only allowed to take any pain med, from tylanol to hydrocodone only 2 days a week.