I don't know about it being IIH or from Diamox, because I was not able to be on Diamox long enough, but I do know that, even though it does not list it, when my potassium is low (which is often!), I do not just get cramps...I will twitch, or shake. So yeah, I think it MAY possibly be potassium...

Again, don't quote me...but I've had it happen. I had low potassium give me a seizure once. Obviously it was really, really low then, but you get my point.

Thanks Heather, I called the nurse and she put in a request to have my potassium checked, but I have to see the doctor too...blah, I am begining to hate doctors visits!

I know, it does take a toll on you to have so many visits, but if it is potassium, I would say you definitely need to know...and sometimes, if it is really low, they will do IV potassium (which burns so bad!)...but I'm sure you know that, haha.

And if it's something else, like medication...you need him for that, too! :p

Let me know how it goes??

I had tremors for months, and occasionally still do. They would wake me up out of my sleep. Sometimes my hands, legs, chest...

It was way before the diamox, and before my dx. I do think it was from IH because I was very sick when I was getting them. Either way, they went away on their own. I went to see a neuro about it and his answer was that some people have a low tremor threshold. He did give me an EEG (?) and some other types of tests. In the end they found nothing though.

I would check with your neuro. He will probably have you do some testing.

It is true that some types of seizures can manifest as a tremors. That may be another reason she is saying you need to see the doctor. But I am thinking, and hoping, that it will not be an urgent concern...fingers crossed, girly!

I am very interested to see what they say!

I've had tremors in my hands and arms for as long as I can remember. Mine range from really mild to the lower side of severe. Several things make mine worse and high pressure and severe are the worst culprits. My neuro evaluates the severity of them at every visit.
They worry me. It's definitely a neurological problem, but it could be related to the traumatic brain injury I had as a child and the many concussions I've had since then. I don't know what it means for me, but keep track of it, especially if it gets worse.

Well the doctor said it could be a result of my subclinical hyperthyroidism seeing as he believes them to be intent tremors. He said if not it is probably genetic. Either way he said I can expect them to get worse with age. Just. Freakin. Lovely!

Ok so I picked up my labs after my doctor told me they were all fine. I know that there are some things that can be slightly out of range and are ok like that but others not so much. So my chloride levels are way high which suggests metabolic alkalosis and leads to things that I have been experiencing like tremors, twitching, exhaustion, etc. My potassium was normal but um by like 0.1 point. My glucose was low-normal but considering it wasn't a fasting lab it should have been higher because I had just eaten breakfast which would mean my glucose was more than likely low. There were a couple of others that actually registered High/low but they can be accounted for because of stress or my subclinical hyperthyroidism.
Anyway I guess he didn't think it was important to comment that the CL or the potassium were where they are. Instead he told me I should be happy because since May I've lost 11 lbs. yes I should freakin thrilled to pieces. I started out on a 1200 calorie/day diet, 60 minutes of cardio(which should be enough to make me lose a lot of weight) now I am on a 6-800 calorie/day diet, on a prescription diet meds from my neuro, still doing 60 mins of cardio 7 days a week and after 4 wks like that...I've lost a whopping 5 lbs. Yep I'm celebrating alright. Sorry I don't mean to sound negative I am just so tired of playing their games!

I do know that my mom has thyroid issues (they actually killed hers, so I guess she technically does not have one) so when her levels are not right, she does shake, too...thought I'd throw that in there.

Your potassium was only "normal" by 0.1? That annoys me, lol. Yes, it is technically normal, but a lot of PTC sufferers have potassium issues...you may want to eat a little extra potassium for a few days just to get that up. My primary doctor has actually thrown out the word hypokalemia (low potassium for those who don't know). I have not been given the actual diagnosis of that, but every time I see her, we talk about how I have to take OTC potassium pills. I can tell when I need it, though, because my body will get crampy, achy, or my body will twitch. I twitched all of my life up until I was taken to the hospital looking like I had turrets once. Once they checked my blood, they put me on IV drip potassium and my mom said that as it was going in, she could just see my body calming down and the twitching stop. Ever since then, it's been what I've used! It made me delirious when my potassium was so low, I was so out of it...I have hardly no memory of it. They had to use five bags of potassium and four pills, that's how low it was! Crazy stuff.

So anyhow...I'd just try to get an extra dose for a couple days. Even if that's not what the issue is, you mentioned cramping...it will at least help that.

As for the chloride, I don't know much about that, honestly...I have only ever had one thing off in my blood and you just heard it!

Girl, I am having trouble losing weight, too. My neurologist wants me to work on losing one pound a week. It's not unrealistic. I think I have? It's so hard to tell because it can fluctuate when my period is coming...I hate being a woman sometimes!! :(