Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
It can be normal, for a short period of time, to still have a headache.This is due to the fact that your body must have adjusted to the higher pressure and now must get use to the lower levels.
This can take a week or two but if you dont feel an improvement by then, call your NS to have a chat ,
As for the staples, I would think they could benefit from some clean water. Just make very sure to dry the area properly. You could use a hair dryer, on its lowest speed to do it as a towel might hurt you.
When you shower, try to keep away from any perfumed products, including shampoo.Or at least turn away from the shampoo suds running over the site. It could irritate the would.
I hate to say this but,,its early days yet. Time for resting and letting your body heal.
How are you doing with the extra csf in the abdominal area? No bad cramps or sharp pains? this is usually the bigger problem, so hopefully you have escaped it!
I am glad its all over and you are back home. Take your time, and enjoy the time off! Cath.
Thanks for ur advice! As for the stomach pains its more like heavyness and yes stabbing pain that goes down to ( the area ) I'm pretty sure u have an idea what im talkin bout..totally uncomfortable! When I walk I have to hold my belly..I hope I didn't catch an infection from this foreign body inside me cuz now I'm running a low grade fever...oh miss cath I'm so nervous its driving me crazy
The pain you are feeling "down there" yes, is normal to. We all get it whether we have a VP or LP shunt. Not sure really why, unless it is referred pain and just "feels " like it is there.
What do you term a low grade fever? If it is higher than 99 degrees F, go and see your dr. It could be an infection or maybe , just the stress of the surgery. We all react differently to stress. When I was younger, I always had a low fever from getting over tired or stressed. But dont take any chances.
If you feel something is wrong, straight to the drs with you.
Are the sites, clean,, dry? Any signs of weeping, pus, redness, particularly sore?
You are still very early post op. Your body is very busy healing and getting used to this new thing inside it. That's why the resting is so important. Of course, you must also get up and about, but do not overtire yourself in a bid to get better quicker. It wont work I'm afraid.
Try to relax and yes, rest. If, you feel the fever is significant, call the dr. What harm if its nothing? Better safe than sorry.
I would put bets on , that, we all have called the dr, in the first week after surgery! I did!. So, calm yourself, relax, ok? Cath.
It took me a good 2 weeks to get through recovery.. Oh yes, the pain in all the wrong places! Its been 5 weeks for me.. and I still get the wonderful pain. Friday, I was in a meeting at work, discusing a process with other department heads. Right in the middle of my conversation.. ugh.. I got the worse pain down low..that I closed my eyes and made a funny noise..it only last for a few seconds, but man it hurt.. when I open my eyes everyone was just staring at me...lol..I apologized and finished my comment. ..It does not happen everyday.. I am pray'n that it stops soon..
Just take it easy, and don't rush things.
Im back at work and lovin it..no headaches.. I can fit into my jeans again..All my family and friends tell me I look normal now.. I tell them I feel normal..Even though it has been only 5 weeks..I am so happy I made the decision to move forward with the shunt. I have learned to take each day and enjoy it..I will never take a pain free day for granted again...
debi