Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
Came to Ohio to see Dr. Katz for my Friday appointment. As we inched closer to Columbus, however, I began having head pain and pressure. When we arrived at my mothers I took medication and felt a litle better, but, then took the children trick or treating. Needless to say, by the time our outing was over I was in excruciating pain. My husband took me to the hospital...another LP was done (just had one done 3 weeks ago), and my opening pressure was 38. I saw Dr. Katz the next morning and he decided that it was definitely time for a shunt.
I have now been admitted to OSU hospital and am scheduled to have a shunt placement surgery sometime on Monday. This is all happening so quickly, it is truly a blur. My 18 year old son is still in Rochester and is having a difficult time knowing that he can't be here. The whole family is a bit nervous about the procedure...and of course, you all know I'm terrified. But, as you know, I can't endure the agony of the disease without treatment either.
So, now it's my turn....hoping it will turn out well.
MM3
I have now been admitted to OSU hospital and am scheduled to have a shunt placement surgery sometime on Monday. This is all happening so quickly, it is truly a blur. My 18 year old son is still in Rochester and is having a difficult time knowing that he can't be here. The whole family is a bit nervous about the procedure...and of course, you all know I'm terrified. But, as you know, I can't endure the agony of the disease without treatment either.
So, now it's my turn....hoping it will turn out well.
MM3
Khrys may be back on FB before long. We are hoping to get her back home (her moms house) today. The challenge is getting one group of doctors to agree with another group of doctors. They dont talk to each other and recommend treatment regiments that are polar opposites of one another. (Our health care system at work) She looks great. Shes still in need of a lot of rest.
Then her friend wrote she had talked to her and she was quite miserable...but don't know much more than that
As many of you now know, while I think the surgery helped with the HA pain...I am now having other strange effects...including what we believe to be seizures. (See my new post.)
I'm not miserable anymore...just a little scared...so once, again your support is needed and moreover welcomed. Thank you all.
MM3