Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
I don't have problems in the shower like you described - I just q-tip when I'm done showering and that helps. But my ears are usually damp throughout the day or when the pressure is higher in the atmosphere.
Hope this helps - I haven't heard of this swimmer ear stuff you mentioned...may have to check it out.
:) Mandy
Kim
I dry my ears out each time I shower with a tissue and qtip (carefully) to try to help with the feelings of something being in there (though I think it's just in my head!)
My Neuro and my NS have both told me it's due to pressure and neuralgia caused by the pressure. I have to use q-tips every time I get water in my ears. I carry them in my purse. Anyone remember that old game show, Let's Make A Deal, I think it was, where the host would give people money for having random on their person? I think as a group we would win!
I used to just clear them out with a Q-tip after a shower or swimming, but using a Q-tip, even to barely touch inside, causes so much pain I could cry...or scream. And now, it is becoming constant. I have been checked for fluid in my ears, infections, etc. and there has been none...my primary doctor said alcohol or swimmers ear drops to help, which WAS helping until just the past few days...now I am just frustrated. :(
whats really weird is the ear drainage when i cry. its like im crying out of my ears. none of my drs can explain that one.
I take pain killers for them, as I do for my hds. I am fed up with pain and will not put up with it any more. Thankfully my neuro is sympathetic and allows me to take what ever I need.
I have never found any thing that helps with them but I agree with armywife that it is a sign of high pressure. When my pressure drops so does the ear ache. Drs generally don't believe you about it I find. Cath
Yes, I have a VP shunt. I had mine originally placed in December 2010, then the valve replaced in July 2011, and then in February 2012 an anti-siphon device placed onto the catheter (in the right side of my chest, under my collarbone) because my shunt was overdraining (malfunctioning) and this was a way to stop that and not require another brain surgery.
So I have been okay pressure wise since then. I have not had any LP's or anything. My eye pain (main sign of my pressure, I can always tell when there is an issue) has been controlled with no medications or anything, no more vomiting from low pressure, etc. Since May, I have had a massive decrease in pain...EXCEPT my ears. I have had them checked since then, and no infection...and my pressure is not high, as far as we know. But I honestly think that if this were the only symptom I had to deal with, if my pressure was a little high, I would take it over my head hurting any day!
I will keep on it. I am going to ask my neurologist next time I see him and maybe he will know. My primary doctor can only do so much and she checks them every time I see her (which, okay, granted I do not see any of them much right now...)
I'm thinking of you during your surgery. Hugsss
Heather