Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
Hey everyone! Just checking in and giving an update to what is going on with me! I see a lot of people kind of disappears from this site once the problem is gone and tends to forget about us. Me, I did not forget about u! just going through alot of things! As some of u may know I just had a baby, hes 7 weeks.. a beautiful baby boy name Jediyah..10lbs 14oz...yes a bigg boy! I have the LP shunt as well and everything is still in tact! I just had alot of issues with my heart while being pregnant. Its like the "head problem" is corrected for now so lets bother Krystal's heart...smh..well I developed congestive heart failure and cardiomyopthy..the pregnancy cause to much of a strain on my heart. Its scary to know that I have a problem with my "brain" and now my "heart" what else could possibly go wrong! Well!!!!! Thanks to the awesome team of Dr's I have my heart is back to normal! but now im suffering from BAD dizziness! i mean feeling like im going to pass out, hard to care for my baby bcuz of the fear that I will pass out while holding him..do u think this is a symptom of IH? My neuro said its not so she wants to test me for MS...thats the last thing I need! I just need this constant dizziness to go away! does anyone else has horrible dizziness and what did u do for relief?
Now on the dizziness. I get dizzy all the time. I even pass out occasionally. I have the worst problems when my pressure is high. Since you just had a baby, are you breast feeding? I ask because I worry that you may be dehydrated. I also had a lot of dizziness issues after I had my daughter. I breast fed and she ate all the time! Even if you are using formula, just remember to make sure that you are getting enough to east and drink. It's so easy to get caught up in taking care of babies that we forget to take care of ourselves.
I think that it very well could be IH. Your body has been through an incredible stressor and there is still no rest for you yet. However, your Neuro could be right too. In the end you are the best judge of your body and you know what your other IH symptoms feel like.
Hugs to you and your little one.
Brandee
I found that my dizzy came from eating wrong, weight gain, inceased pressure on cerebellum. When i get back in gear on improving eat n drink it improves for me.
Mary
I don't have any helpful advice to offer, but I'll send prayers for you and your family that you feel better and this doesn't turn out to be MS. So glad you checked in, and I hope you feel better very soon!