Hi Angeline,

I would like to say that I have just went throught the whole BC Pill change also. I was very stubborn and read all the info that it could be making the headaches worse but I stayed on it feeling as though I needed it. I finally just made the switch. I used nothing for a month and then started getting the shot. I will say this last month my head has been much better! I do not know if its doing well because of stopping the pill or not but I feel something deifferent for the better and its amazing.

HI Woodyd78 -
Very interesting. If you don't mind me asking - what kind of shot do you receive? I'm considering all of my options.
That's awesome that you are feeling better. These headaches are so annoying. I have a full time job and a three year old and I"m struggling!!! I feel so bad - every morning my three year old will ask me, "mommy, how's your head today?".
I hope to feel better soon.
Thanks for your response.
Angie

Update.
I met with the gyncologist today and suprisingly she had heard of PTC - YEAH!! She recommmended the Mirena IUD for me because its non systemic and hormones are directly delivered to uterus.
Bax - all the information you shared was right on!!! Thank you!!

YES! birth control does do something to your body with this PTC!!!! Fluid retention, weight gain, blood clots, you name it - Just stay off of it - it does more harm than good. Also don't consume too much vitamin A, this is also a contributor.
Sun light is bad for everyone, just take extra precaussions! Seriously! I am olive skin, and I burned a lot easier, so use a high level of protection.
I suffer from the same thing and it hasn't been easy, you never know when you will be in pain. The Diamox is expensive and you will have to be on it for the rest of your life, unless they figure out how to cure this condition.
The one thing that has really helped me is eating a lot of raw foods....read up about it...it really will change you for the better from the inside out!

YES! birth control does do something to your body with this PTC!!!! Fluid retention, weight gain, blood clots, you name it - Just stay off of it - it does more harm than good. Also don't consume too much vitamin A, this is also a contributor.
Sun light is bad for everyone, just take extra precaussions! Seriously! I am olive skin, and I burned a lot easier, so use a high level of protection.
I suffer from the same thing and it hasn't been easy, you never know when you will be in pain. The Diamox is expensive and you will have to be on it for the rest of your life, unless they figure out how to cure this condition.
The one thing that has really helped me is eating a lot of raw foods....read up about it...it really will change you for the better from the inside out!

This isn't about birth control in general, altho' I was told right off that BC could cause PTC, or so it was believed.

I was laying in bed the other night and I saw one of those commercials about lawsuits. Have you or a loved one taken YAZ , do you now someone that has died while taking YAZ, do you or a loved one suffer from any other illness since taking YAZ.

I was just like wow!!! I don't think YAZ has been out that long, and now it's killing people?

Hi!
I'm kind of late with my opinion, but I want to share my experience with you. I'm a patient of Endometriosis for the past 20 years. I used birth control pills for almost 15 years, the last pills were precisely Seasonale. My doctors believe my PTC is related to the use of the pill, but the funny thing is that I stopped using the pill on 2004, when I got married and my PTC symptoms began on 2008, 4 years later. Therefore is kind of weird for me to develop this condition after being hormone-free for about 4 years. I'm honestly not entirely convinced that in my case my PTC is hormone related. On the contrary, I will like to convince my doctors to allow me Seasonale for a while to see if it really affects me.
KrYs

Krystell

I agree, I took BC for about 2 months when I was 16, that's it! I do worry about the hormones in foods though. My mind is just all over the place with ptc. Nothing seems to add up, why would it not affect every person on BC if it were BC or at least affect more than a handful.

The more I think about this, I think I have had PTC for many years. I don't know what triggered it to go into full affect as of the last year or so, the only thing I can imagine causing that would be the trauma of my moving from ,NC, to, IA.. That was honestly a traumatic experience for me.

I can remember the first time being in the sun bothered me badly. ( it didn't last)
I can remember my first pressure headache.
I can remember a few things I feel are related to ptc and they started years and years ago. it's just so frustrating!!!

Betty, once again ,Im with you on this! One dr felt that, and I agree, that a terrible Sept07,( lost two people very dear to me suddenly) kick started the illness. I had a lot of symptoms prior to that but nothing of any real note until the following month when it all began in earnest. Went on a slippery slow from there.So, yes, I think a trauma can set it off. Cath.

Caiti had very bad endometriosis, had 2 surgeries and then went on Synarel, which is BC in the form of a nasal spray. When she was first admitted to hospital with ptc in July 2008, the neuroligist immediately took her off synarel, and put her on depo-provera, which is the shot you get every 3 months. Weird, but they attributed the PTC to Synarel in particular, not other BC.

They really don't know much about this, do they?

Cath

When I think about my first few symptoms, I had off an on, It started after I lost my mother.
Then when we moved to Iowa, It seems I lost any sense of peace I had. Six months or so after moving here I started having terrible symptoms.
Betty!

Yes!!!! I developed pseudotumor cerebri after having the skyla iud in and before that, the mirena. After removing it, i went through a pretty intense hormonal shift. I started getting optical migraines which were very scary and prompted me to go to the Opthamologist. I got the Lumbar Puncture the mris etc. 5 months ago i had 2+ papilledema and today it was hardly present. I will never touch birth control again.

Hello,
I'd been on birth control since I was 15, (the pill) and am now 17. While hormones and etc can cause issues with fluid retention, I had a differen case. Since I had estrogen pills, I actually devolved a blood clot where my spinal fluid drains. I'd recommend getting an MRV (fancy MRI) ASAP if they didn't do one and you're in estrogen.