Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
went to the neurologist to get my botox shots. got those done no problem. my doctor's physician's assistant looked into my eyes and said the nerves look swollen so she had my neuro look and he said they are. so i get to get a new MRI and another spinal tap. MRI is Tuesday and spinal tap is Friday. this will be MRI number 5 and spinal tap number 6 when is this going to end ugh not a good day!!!!!
deleted_user
I am truly sorry you are having so much trouble. I hope you don't mind if i pray for you. Keep your chin up and know that you aren't alone. I have been dealing since 2001. Nobody could tell me what was wrong til 2005. It will get better...
deleted_user
I'm so sorry you're going through this. For the past 3 years I've had spinal taps every 6 weeks. I feel your pain and I don't know when it will end but hopefully sometime we will have something that fixes this for good! You're in my thoughts!
nickkiez
Thanks guys I have had this since 1996 when I was 16 wish it would go away so tired of pain headaches neck pain all of it oh well guess I have to suck it up I know the tap won't be that bad I've had five of them. Thanks for the prayers too
deleted_user
you've been dealing with this since 1996 and are still getting spinal taps done? This scares me so bad. I've only had it less than a year and I'm ready to throw in the towel. I'm sorry you have to have another MRI and another spinal tap, not good news at all. I know this was a few days ago so I hope those tests went okay. Prayers are coming your way! :)
nickkiez
Mri was fine spinal tap is tomorrow. Even though I've had 5 of these I'm still nervous about getting another. I'll let ya know how it goes tomorrow
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My 6mo twin DD's are EBF and just started rice cereal on the first. Everything has been going fine except this morning one of them had a diaper rash (lots of redness around her anus). I read this as one of the signs of an allergy. BUT I did just buy a different brand diaper yesterday (which they have used randomly before w/no issues). Do you think its the cereal or the diaper? Im ready to start...